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Dear Dr Cannell: More on lupus

Posted on: September 6, 2011   by  John Cannell, MD

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Dear Dr. Cannell:

I am most surprised at (a previous) letter and the way it is presented!! Having HAD lupus (discoid and SLE for 20 years), I will speak with some authority. Yes, most ill people are vitamin D deficient. Raising vitamin D levels in lupus patients does help but not cure as seen with autism.

You seem to infer vitamin D deficiency causes lupus. Very irresponsible! One could make the same statement about magnesium and lupus.

Mary, New York

Dear Mary:

I didn’t imply that, I outright said it (actually, I simply quoted the scientists who discovered evidence that the severity of vitamin D deficiency is directly associated with the severity of lupus). Without knowing your vitamin D dosage or you vitamin D level, I can’t know how much more it might help you.

However, I have no doubt that vitamin D will fail in some people. Remember, the repair and maintenance steroid hormone, vitamin D, needs adequate levels for full functionality. Also, remember, everyone who takes vitamin D will die; it is just a question of when.

 

Dear Dr. Cannell:

I am an African American woman who was raised in the Northeast (New York), and many years ago, my sister was diagnosed with lupus. No one knew why she had it or how to treat it at that time (1967). Consequently, she was given experimental doses of Prednisone which eventually killed her. They did not know how to treat it, or why she contracted SLE, so they just gave her mega doses of steroids to stop the symptoms. After 2 years of treatment, her kidneys went, and she died. At the time, I heard that black women have 5X greater rates of SLE than other ethnic groups. Vitamin D deficiency might be the reason why.

Thank you Dr. Cannell for all your research and keep up the blessed work.

Ann, Baltimore

Dear Ann:

Thank you. To the best of my knowledge, all the autoimmune disorders are more common in African Americans. The epidemic of autoimmune disorders in children, especially insulin dependent diabetes, is truly alarming. A few days ago, I read of an 18 month old who had to start insulin injections. The child was African American.

Please get all of your friends and family to sign our FDA petition. We are currently in the process of restructuring our document to file directly with the FDA. We are asking the FDA to do what the FNB failed to ask, increase awareness of vitamin D deficiency in African Americans and consider vitamin D food fortification. A large group of Americans will never take supplements or go out in the sun. Food fortification can be a way to get African Americans a modicum of the vitamin D they need. Forward this petition to everyone you know, we would like to get 10,000 signatures before we file it.

2 Responses to Dear Dr Cannell: More on lupus

  1. Rita and Misty

    Dr. Cannell–what is the status on this?

    “Please get all of your friends and family to sign our FDA petition. We are currently in the process of restructuring our document to file directly with the FDA. We are asking the FDA to do what the FNB failed to ask, increase awareness of vitamin D deficiency in African Americans and consider vitamin D food fortification. A large group of Americans will never take supplements or go out in the sun. Food fortification can be a way to get African Americans a modicum of the vitamin D they need. Forward this petition to everyone you know, we would like to get 10,000 signatures before we file it.”

  2. Rita and Misty

    Brant,

    Perhaps I can help with these signatures if this item is still on the table.

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