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What happened to all the posts/questions between 4 days and 10 months ago? I'd like to follow up on my previous posts within that period.

Asked by  DL3988835900 on November 29, 2016

Answers
  •  DL3988835900 on

    See title

    Answered by  DL3988835900 on
  •  IAW on

    Sorry DL they are gone. The VDC knows they are “missing” and are going to try and get them back. How long that might take, I do not know. They launched this new website and there were some “glitches” but they need to go ahead and launch anyway.

    Answered by  IAW on
  •  DL3988835900 on

    That’s a shame. You might remember that I posted previously about my D3 levels going down despite 4 courses of treatment, the last being of 60000iu per week. I mentioned the widespread bone pains I was having which thankfully dissipated over the course of my last treatment. Since then, on your recommendation, I have been taking a maintenance 5000iu per day and I’m delighted to say following a recent blood test that my levels have improved to a dizzy 58nmol/L (23ng/mL). Still insufficient in UK NHS terms and I’ll be starting a 5th course of treatment shortly. I do, however, feel very much better – the bone pain hasn’t returned and even my slightly arthritic joints are less painful. I’m less tired and have fewer IBS problems. How much is down to better D3 levels I don’t know, but I’m very relieved and grateful for the Council’s help.

    Answered by  DL3988835900 on
  •  IAW on

    You are welcome!
    Unfortunately I lost a lot of history with people like you, when the information did not carry over. So if I repeat my self or ask same questions again, I am sorry.
    So you took 60,000iu a week for 8 weeks? (If less or more weeks please let me know because it figures into my thoughts.) Then you started taking 5000iu a day until I guess you had the test done and you made it to 23ng/ml.
    Did I ever ask you how much you weigh because it figures into how much you should take?
    I am glad you are feeling better but…..
    On 60,000 iu a week (for 8 weeks?) which is an average of 8500 iu a day you only made it to 23ng/ml. The VDC goal is 50ng/ml to be healthy and like you said you are still deficient.
    The “why” you only made it that far could be because of your weight and you need to take more. A maintenance dosage for you is going to be much higher than the 5000iu a day. It could also be because you are in a “disease” state that you need a much higher intake of Vitamin D for a lot longer until you are completely healed. Then once that happens you might be able to do a lower dosage. Also the IBS might not let you absorb the Vitamin D as well. (What level were you at before starting treatment?) You obviously are absorbing some because you feel better. (Oral spray Vitamin D does absorb well and you may need to consider that.)
    So depending on some of your answers to the above questions, you may seriously want to consider adding to the 60,000iu once a week. For instance keep taking the 5000iu once a day along with the 60,000iu once a week. If at the end of 8 weeks you retest with “no lapse” in the amount of Vitamin D taken and now you are at 50ng/ml then you would need to take 13,500 iu a day. If your level is higher than 50ng/ml, then you need an amount somewhere between 8500 iu and 13,500 iu.

    Answered by  IAW on
  •  DL3988835900 on

    Hi IAW, for my last treatment, I was prescribed 20000iu 3 times per week for 10 weeks. My weight is 155lbs. I’m not 100% sure about the level before starting the last treatment but my recollection is that it was 16ng/ml. My doctor has prescribed a lower dosage of 20000iu 2 times per week over 15 weeks for my next treatment, with a re-test in about 11 weeks.

    Answered by  DL3988835900 on
  •  IAW on

    Your doctor is trying to reach 80nmol/l (32ng/ml). As stated before we believe in maintaining a “healthy” level of 50ng/ml (125nmol/l). Research already shows that at levels below 40ng/ml, your risk for cancer and autoimmune disease rises dramatically.
    Your doctor is WRONG! He is cutting back on the amount you take when you haven’t even reached the bottom end of the range. (If anything he should have given you more.) It takes about 8 weeks of taking the same amount of Vitamin D to know what your level will end up to be. So you have taken it long enough and you are not overweight. That means you are not taking enough OR your IBS is keeping you from absorbing it OR in a disease state you are using it up really fast.
    So since it could very well be an absorption issue, here is my recommendation. You could first ask the doctor why he would “decrease” the amount you take if you have not reached the goal to begin with and see if he will put you back on the 60,000iu a week. (This would keep some money in your pocket.) If he will not or you just want to do this on your own, do the following.
    Get enough Vitamin D in capsule form to take a total of 60,000iu a week. In your instance I would recommend Biotech brand so we do not have to worry about it not having the stated amount of Vitamin D in it. That will at least not allow you to backslide and “can maintain what you have gained”. Then get some oral spray. Here is an example at https://www.amazon.co.uk/s/?ie=UTF8&keywords=vit+d+oral+spray&tag=googhydr-21&index=aps&hvadid=48452352498&hvpos=1t1&hvnetw=g&hvrand=8983363276561059315&hvpone=&hvptwo=&hvqmt=b&hvdev=c&hvdvcmdl=&hvlocint=2826&hvlocphy=9008239&hvtargid=kwd-19726906343&ref=pd_sl_4u5sbtx0zk_b. I cannot vouch for this brand but I do know that oral sprays do work. If one spray equals 3000iu, then I would use “two” sprays or total 6000iu. http://www.greenvits.eu/collections/vitamin-d also is a supplier of Vitamin D but no sprays.
    At 11 weeks you are due for a recheck. If your levels increase a lot, then you will know that you need to take the oral spray at least for now rather than capsules. If the levels barely increase again, then it is plan B to be discussed then.
    Hope this all makes sense. If not let me know!

    Answered by  IAW on
  •  DL3988835900 on

    Thank you for your further suggestions which all make eminent sense. Fortunately, while my doctor talked in consultation about 40000iu per week, she has actually prescribed 60000iu so that’s a positive development. With regard to the oral spray, can I check that you’re recommending a total of 6000iu per day. Thank you for your continued interest.

    Answered by  DL3988835900 on
  •  IAW on

    Yes, my advice is to get the oral spray and do 6000iu per day. So we are clear, also keep taking the amount the doctor prescribed too.
    I would hope that in 11 weeks your Vitamin D level will rise to at least 50ng/ml. If for some odd reason it ends up a lot higher, do not panic. Even levels of 150ng/ml are safe but it is not what we are trying to accomplish.
    I always like to err on the side of caution, so if you develop any new symptoms, come back and tell me right away. It will most likely be a mineral deficiency but it can happen at any time.
    The only thing I cannot anticipate is the following. If you take the oral spray and now you absorb the Vitamin D better and your health starts to really improve fast, then I do not know if all of a sudden you will also start to better absorb the Vitamin D capsules since it could make the IBS better. So again, any new symptoms, tell me.

    Answered by  IAW on
  •  DL3988835900 on

    Thanks again for the advice. My doctor has now requested me to have my urine tested towards the end of my next round of treatment. This wasn’t discussed in my consultation with her so I don’t know what she’s looking for. The urine tests she has requested are for protein electrophoresis and vitamin D. I’m baffled by the latter as I thought Vitamin D wasn’t excreted in urine. A sample tube containing powedered Boric Acid has been provided. Would you be able to shed any light on it?

    Answered by  DL3988835900 on
  •  IAW on

    DL in case I have not already said this, I am not a doctor. Maybe I can guess. I think she is wondering why your levels are not increasing. I have no idea if they can request a lab look for high amounts in your urine which would mean you are not absorbing it. You are correct that normally it would not be found in your urine. If it is passing right through you with little absorbed then maybe it does show up there. If there is protein found then your kidneys are not doing what they should be and again might cause an absorption issue. (I wouldn’t worry about the test and I think the oral spray will work.)
    Now you could approach this differently, if you want to. You could go back to the doctor and say that you found out through our organization that if someone has IBS issues that an oral spray usually absorbs better. So then with her permission you would like to try the oral spray (I would assume you will have to pay for it) and do “three” sprays a day for a total of 9000iu a day and for the same number of weeks.
    If you stick to the original plan I gave you the other day and it works, then you should really tell her afterwards what you did so she understands the benefit of an oral spray.

    Answered by  IAW on

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