My levels have gone from very low in March to high in July. I have started to feel quite a lot better, but I still have some symptoms. I have a feeling that it has been low for much longer than I realised. Does anyone know how long it takes to feel 100% again? I am getting frustrated at not being to do things I could do a year ago.

Asked by  tjr2917551900 on August 17, 2015

Answers

  • tjr2917551900
    Participant
     tjr2917551900 on

    See title

    Answered by  tjr2917551900 on

  • IAW
    Participant
     IAW on

    It would probably be a little more helpful it you can say what your levels measured at in March and July. Make sure to include unit of measure as nmol/l or ng/ml.
    Also what symptoms do you continue to have and how much Vitamin D are you taking?

    Answered by  IAW on

  • tjr2917551900
    Participant
     tjr2917551900 on

    Thanks for reply. I’m in UK. Level was 18 nmol/l in March. At the end of July it was 248 nmol/l. I had taken 2 x 20,000 iu D3 on Dr’s prescription for 7 weeks.
    Then for 10 weeks I followed a protocol I had a lot about, taking 5,000 daily initially, and 10,000 after 2 weeks, with Vit K2 and magnesium.
    I had to pay for the blood spot test in July to do at home. I assume it is accurate. I was advised to spot supplementing for 3 weeks to let it drop a little, then take 1 – 2,000 daily afterwards. I’m tempted to take 5,000 when I re-start! I still have restless legs sometimes, a little brain fog sometimes, sometimes get exhausted, and I don’t feel I can stand for more than a few minutes – my legs feel like they’ll give way, so I hold on to something. But I am way better since I started treatment. I just wonder if it takes longer for the body to fully recover even though levels look good on paper eg 6 months or 12 months perhaps?

    Answered by  tjr2917551900 on

  • IAW
    Participant
     IAW on

    So first how much magnesium do you take and what kind? Magnesium Oxide is not very good and daily requirements are more like 500 to 800 mg. a day.
    If you weigh more than average weight of 150lbs you may have to take more Vitamin D than what we recommend which is 5000iu a day.
    When you stopped taking it, Vitamin D has a 1/2 life of about two weeks therefore your level went from about 250nmol/l to 125nmol/l and then it went a little lower by week three. (I probably would have had you just cut back to 5000iu a day and not stop.)
    More and more people ask “How long before I feel better?” Yesterday I asked someone to try and keep track for me, how long it takes them to feel better and report back so I can pass that info onto others. Everyone is different and it may take awhile to completely heal but that is only a guess.
    I would definitely take 5000iu a day and not lower. If you feel symptoms are getting worse again then you may need to take a higher amount. If so then try 8000iu a day and see what happens. The upper end of the range is 250nmol/l and we know 375nmol/l (150ng.ml) is safe and taking 10,000iu a day is safe. So really you were not over the upper end of the range.
    Hope this helps!

    Answered by  IAW on

    • tjr2917551900
      Participant
       tjr2917551900 on

      Many thanks again. It’s so hard to know if advice I hear is right or not. My Dr is great, but is not an expert on this! I’d not heard about D3 half life… I’ll start 5,000 again straightaway. I weigh about 140 lbs. I have gained about 12 lbs this year, tho I think some of that is because my thyroid treatment was too low again. I’m taking 3 x 120 mg magnesium capsule daily. It was suggested I take 4, but my stomach doesn’t like that much. My symptoms haven’t really got worse again (yet, anyway) but I had not felt fully right, even when my levels said 248 nmol after 4 months treatment.

      Answered by  tjr2917551900 on

  • IAW
    Participant
     IAW on

    Has anyone ever checked you for thyroid antibodies or do you have Hashimoto’s? An excellent website http://www.tiredthyroid.com. She explains why you cannot just use a TSH level to treat someone with hypothyroidism.

    Answered by  IAW on

  • tjr2917551900
    Participant
     tjr2917551900 on

    No I haven’t had antibodies checked. But I was hyperthyroid – Graves – about 30 years ago, then radioactive iodine treatment about 2 years later, and consequently hypothyroid since then. I’ve been on the same level of thyroxine for many years, but had to change manufacturer before Xmas 2014, and I think that made my thyroid levels too high, and I had a few months to get on a good dose again. My Dr does check TSH T4 and T3, and also always asks how I actually feel, so we do get it right between us I think!

    Answered by  tjr2917551900 on

  • IAW
    Participant
     IAW on

    Just keep in mind that the Free T4 and Free T3 ranges are badly “skewed”. Meaning you probably will not feel well if your level goes below 1/2 way in either range.

    Answered by  IAW on

  • tjr2917551900
    Participant
     tjr2917551900 on

    Thanks. Though my main problem this year has definitely been very low Vitamin D. My present symptoms are still from that (but a lot less than months ago). They are a bit different from when I get thyroid symptoms. Just hope they finally disappear before too long…

    Answered by  tjr2917551900 on

Recent Discussion

Popular Questions