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I tested at 33ng/ml and started taking 10,000 of D3. After 7 weeks I retested and I am at 60 ng/ml. I weight 135 pounds. What should my maintenance dose be? Also, I started this regime because I have inflammatory auto-immune condition, and also a chronic hamstring tendenosis for three years. I heard vitamin D can help those conditions. How long does it usually take to see if D will improve these conditions. Thanks.

Asked by  Justine on November 21, 2017

Answers
  •  Justine on

    See title

    Answered by  Justine on
  •  IAW on

    IF you did not have any health issues and had a level of 33ng/ml, I would have said take 5000iu a day and then retest in 8 weeks to make sure you now have a level of 50 ng/ml.
    Since you have health issues, you may want to try one of the following.
    First one would be to stay on the 10,000iu. This is because you only made it to 60ng/ml taking the 10,000iu. By the way you phrased it above, it sounds like neither condition has changed for you in the 7 weeks. So “maybe at the higher amount of Vitamin D”, for a “longer” period of time, you may see some improvement.
    The second one you could do is push your level higher and see if that helps either or both conditions. So you could try and take 15,000iu and see how you feel. You do not necessarily have to retest again in 8 weeks, just go by how you feel at that point. (If 15,000iu does not help, then you may want to try an even higher amount of Vitamin D but I would start with the 15,000.) Eventually you may want to retest but right now I would go by “how do I feel”. It is easier for me to give you advice in smaller steps than all at once.
    If at any point you start any “new” symptoms or old ones get worse, then come back and tell me. It usually means a mineral deficiency or for some people hypercalcemia.
    If you already have not please read http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. It is important!
    If you have any more questions or I was not clear, please ask!

    Answered by  IAW on
  •  Justine on

    I was surprised at your answer because I thought 60ng/ml was the optimal level I should be at so I was thinking that I should find a maintenance dose to stay there. But you are suggesting I need even higher levels to maintain to get results.Because I essentially ‘doubled’ my level in so quick a time, is there any risk of going too high if I continue to take 10,000iu?

    I was diagnosed with psoriatic arthritis but without the skin condition. I take Enbrel for it. The only time I noticed one plaque was after I had my son. Interestingly I had 3 small plaques during this time, but they have disappeared lately. As far as other minerals suggested, I eat a lot of vegetables and yogurt. I have been using a spray-on magnesium because oral upsets my stomach (I also have IBS and a lot of food sensitivities which I’ve had all my life). My calcium levels recently tested good. I regularly take zinc 50mg.as I believe I need that.

    Thank you for your answer. So you are suggesting no need to retest to see if I am too high?

    Answered by  Justine on
  •  IAW on

    It takes a “normal person” (I am going define normal as no health issues) 8 weeks of taking the same amount of Vitamin D to know what level they will end up having. So for instance “normal” would need 5000iu for 8 weeks and should end up at 50ng/ml. This is provided they weigh an average of 150lbs. You took twice that amount so “in theory” you should have a level of 100 but it is only 60. (I realize you tested at 7 weeks but at this point I don’t think it will make that much difference.) Since you have health conditions that means “for right now” you could be going thru more Vitamin D because it is trying to repair things in your body. So you “may” need a lot more Vitamin D upfront to make “fixes” and “less” later on when you are better.
    To put your mind at rest Vitamin D levels are safe to 150ng/ml and probably will not get you into trouble until they are even higher than that. Another way of saying it is you would have to take 40,000iu a day for months before you “may” get hypercalcemia. (Some people get hypercalcemia after taking only 1000iu because of the health issues they have.)
    You said “Interestingly I had 3 small plaques during this time, but they have disappeared lately.” I think you mean while taking the Vitamin D? If so the Vitamin D is “working”.
    IBS can also be caused by lack of Vitamin D. If you have gastric issues then sometimes that can also cause you not to absorb Vitamin D as well. So now that you said this it may also be why your level is not “higher” on the 10,000. But going from 33-60 proves you are absorbing it. This is part of the reason to test to make sure levels are increasing and increasing enough.
    FYI for future reference we are now recommending pregnant woman take 10,000iu during pregnancy. Pregnancy uses up a lot of Vitamin D.
    Now I am not crazy but you could conceivable “cure” the psoriatic arthritis, IBS and tendon issue with Vitamin D. You may like to read https://www.ncbi.nlm.nih.gov/pubmed/24494059. People are “curing” their MS with “huge” amounts of Vitamin D.
    Now if you take enough Vitamin D, at some point you may not need the Enbrel anymore. One step at a time though and I am not a doctor.
    I am sure some people do not have a lot of money to do the testing and some doctors may not co-operate with extra tests. So as long as you do not get any symptoms of Hypercalcemia, then you are OK. Even if you took too much and that happened, the answer is to stop all Vitamin D and do not go out in the sun until your levels decrease and calcium levels go back to normal. There is NO permanent damage.
    Another way to say this is, you at this point are not trying to maintain, you are trying to “treat” like you would with a drug only using Vitamin D.
    How much Vitamin D do you give your child?
    Again if I am not clear just let me know!

    Answered by  IAW on
    •  IAW on

      See Above
      Hypercalcemia
      The symptoms of hypercalcemia include: feeling sick or being sick, poor appetite or loss of appetite, feeling very thirsty, passing urine often, constipation or diarrhea, abdominal pain, muscle weakness or pain, feeling confused, feeling tired and bone pain.

      Answered by  IAW on
  •  Justine on

    Thanks. I live in WY, so winter is trying to happen here. WY has a state sponsored blood draw location which makes it easy and cheap to test frequently. I’ll keep taking the 10,000iu and test again in mid-January then get back to you.

    Answered by  Justine on
  •  IAW on

    Thanks Justine and please do update me!

    Answered by  IAW on

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