VDC test kit slider
VDC-Banner-new_468
VDC test kit slider
sperti-banner
Hi, Im a 54 yr old woman with a diagnosis if Fibromyalgia. I was recently tested for vit d and was found to have a level of 7.6 ng/ml. I have been prescribed 20,000iu 3 x weekly for 3months followed by 800iu 2 x daily for another month. I havent been prescribed vit K with the supplement. I have read here its better to take it daily. Do i need to ask my GP for a daily dose instead of the high alternate day dosage? My GP hasnt mentioned anything about testing my calcium or vit d levels before i finish the course. Also I have Ulceritive Colitis, not avtive for a few years. Could this be a reason for my low vit d? Just to make things even more complicated I am presently tapering off Duloxetine. I only took it for 4 days but was advised a taper would be the best way to stop takingbit given the issues there can be withdrawing from it (Im also very sensitive to drugs actoss the board). Ive been having a low mood, especially on waling up, and know this can be an effect of reducing the Duloxetine but I was wondering if this is possibly being heightened by the low vit d. Is this likely? Im so glad I found you! Thanks for your time.

Asked by  Redstar on November 20, 2017

Answers
  •  Redstar on

    See title

    Answered by  Redstar on
  •  IAW on

    Let’s start with your level of 7.6 ng/ml. It is extremely low and is actually in the Osteomalacia range which is adult rickets.
    It is most likely low Vitamin D levels caused the UC and is probably also causing the fibro and low Vitamin D can also cause depression.
    I encourage everyone to read http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. Vitamin K is a co-factor for D. Vitamin D helps calcium absorb from the intestines and K directs the calcium to where it should go, bone and not soft tissue. IF you do not have enough in your diet, then I suggest you supplement. IF you also lack magnesium in your diet (and most people do), then you should supplement that also. If you do not have enough then the Vitamin D might actually cause you “symptoms”. So if at any point you get any new symptoms OR old symptoms get worse, come back and tell me.
    Sometimes people with gastric issues do have problems absorbing Vitamin D. So I would really encourage you to find some way to get tested after no later than 8 weeks. IF the doctor will not do it, then the VDC does sell at home test kits. (If people have problems absorbing, then usually the next best thing is an oral Vitamin D spray.)
    If you weigh a lot more than 150lbs, let me know. If you weigh more you will need to take a higher amount of Vitamin D.
    It is better for you to take it daily. Unfortunately the doctor might think you are “crazy” for making such a request.
    So here are my suggestions. You can do what the doctor says and take the 20,000 3 x weekly and get tested at 8 weeks to make sure your levels are rising. If you want to take it daily, you could buy your own and do that. I would suggest 10,000iu a day which would be a little more than the 20K 3 times a week. Again get tested at 8 weeks. Whatever you do, do not stop taking the D at 8 weeks, just get tested.
    Here at the VDC we promote “maintaining a healthy level” of 50ng/ml. So first we have to get you better. Once we do that then you need to take a maintenance dosage “forever” or your levels will plummet again. For most people this is a minimum of 5000 iu a day. The 1600iu the doctor suggests after the 3 months will NOT be enough.
    For you, it would be best if we can work at this in “stages”. What I mean by that is the following. Come back and let me know what your level is at 8 weeks BUT more importantly let me know how you “feel”. IF you are starting to feel better and your fibro symptoms are getting less,than you need to keep taking the higher amounts or perhaps even more, until you are better or perhaps I can even use the word “cured”.
    Let me know if you have anymore questions or if I was not clear!

    Answered by  IAW on
  •  Redstar on

    Hi, since your reply I have started to have a recurrence of lower front leg and foot pain, both legs. I’m wondering if this is related to the Vit D supplement? I have, sporadically, taken a Magnesium Malate (425mg 1x a day for the Fibro pain)but am wondering if I may need more and if this could be a factor in my leg pain? I also have a Magnesium Oil Spray. Would it be ok to use both or would it give me too much Magnesium?…can you have too much Magnesium? I have been reading more information re the deficiency and see that Vit K and Zinc are necessary for the utilisation of Vit D…should I be supplementing with these too? Also I am planning to see my Dr tomorrow and will ask to change to the protocol you suggested.I will also ask for my calcium and Vit B12 to be checked as neither have been and I think maybe they should have before I was started on the Vit D mega dose…is this right? Again thank you for your time any advice/information gratefully received.

    Answered by  Redstar on
  •  IAW on

    Well I do not know if it has to do with the tapering off of the Duloxetine?
    Vitamin D uses a lot of magnesium. So “yes” low magnesium may be causing this. When any mineral is low it can cause muscle cramps and/or twitching and/or spasms.
    You can take too much magnesium but it takes an awful lot to cause an issue. If you did NOT have gastric issues than the first thing that usually happens is you get loose bowels and then you have to decrease the dosage. I would have to guess and say to keep your intake at 1000 or below. (I try and spread mine out during the day.) So I would not start out with a 1000 but a minimum of 500 a day would be good.
    Since your D level is so low, it might also be calcium. D helps calcium absorb from the intestines so not having enough D might cause low calcium. Then when your body gets enough D, it might not have enough calcium to go with it. So either way it might cause the pain. Routine blood work really only measures the 1-2% in your blood stream and not your total body stores. So you can still have a mineral deficit.
    I have found quite a few people with Vitamin D deficiency also have a B12 deficiency so it does not hurt to check. No matter what range your lab uses for that I would consider any level below 500-550 “suspect” from what I have read.
    Do you take a multi vitamin or do they disagree with you? As for the zinc and K, if you do not think your diet contains enough, then you should supplement.

    Answered by  IAW on
  •  Redstar on

    Hi, I took a Magnesium supplement this evening before bed, 425mg. It’s now 2am and my legs are still painful…it’s a severe ache and they feel hot/burn on the inside if that makes any sense. I have been lying down since 10pm and this hasn’t made any difference. The UC is stable, and has been for years, and I don’t have any symptoms of a flare up. I did take a multi vitamin but stopped when I started on the Vit D mega dose as I didn’t want to take too much. I have a good diet, although I haven’t been able to eat much over the last few weeks and have actually lost weight, so I don’t know if I have another deficiency. I’m in the U.K. and blood work would take weeks to get the results…it would take a week just to get the bloods taken.

    Answered by  Redstar on
  •  IAW on

    I really do not know what to tell you.
    If you think the Vitamin D is causing a problem, then maybe you will have to take a smaller amount and quite possible work your way up to a higher amount.
    So start with 2000iu a day. If after a week everything is going well, then try doubling that to 4000iu a day.
    I have also told people they may want to stop the Vitamin D and take the magnesium for a week then try the Vitamin D again.
    If it has anything to do with calcium then maybe just go get a supplement and give it a try.

    Answered by  IAW on
  •  Redstar on

    Hi again, sorry for the delay getting back. I’ve been doing some research and discovered that I am also very deficient in Magnesium. The Vit D mega dose I have been given requires I have enough Mag to utilise it. Without enough the Vit D depletes the Mag in the cells to a point where there is not enough to allow muscle to relax after use. This produces construction to the nerves not only the muscle…which causes pain. I sprayed Mag Oil on my legs and it stung, indicating the deficiency, then once it was absorbed the pain started to subside. On my travels I discovered the following study you may find interesting: http://www.cnelm.com/NutritionPractitioner/Issues/Issue_11_1/Articles/7%20Transdermal%20Mg%20revised2.pdf
    I will be following this protocol as my Dr has little knowledge of this issue. I went to see him and I asked for further blood tests to assess my B12 and calcium levels. Thank you so very much for your input. I appreciate it.

    Answered by  Redstar on
  •  IAW on

    Your welcome! Please come back and update me as to your progress. It could very well help others in the future.

    Answered by  IAW on
  •  Redstar on

    He, I’m having a problem: I’m having an issue with nausea. I use a transdermal Mag Chloride spray and I think it may be interacting with the Cholecalciferol I’m taking…I looked it up and there is a moderate drug interaction. As I’m now taking Vit D3 at 10,000iu a day I don’t know whether to stop the Mag oil and see if I settle down or whether that will mess with my Vit D absorption. Thanks

    Answered by  Redstar on
  •  IAW on

    I am not sure what you mean be “drug interaction”. Also as far as I know magnesium does not help Vitamin D “absorb”. It is the vitamin D in combination with enough magnesium that then can perform certain processes.
    The VDC used to list the following symptoms for Magnesium deficiency•Irritability or anxiety, Nausea, Headaches, Insomnia, Fatigue, Muscle cramps/twitching, Weakness and constipation.
    As you can see nausea is listed. Unfortunately it is also listed under “Hypercalcemia”. The symptoms of hypercalcemia include: feeling sick or being sick, poor appetite or loss of appetite, feeling very thirsty, passing urine often, constipation or diarrhea, abdominal pain, muscle weakness or pain, feeling confused, feeling tired and bone pain.
    A simple calcium blood test can tell if you have hypercalcemia.
    Now yesterday I learned through a “webcast” that Vitamin D can cause the “B Vitamins” to go low and it can take two years to do this. (Good grief!) I have seen quite a few people with low B12. One that it caused low B6 and that person figured it out by themselves because they started having eye issues.
    So I found this https://www.livestrong.com/article/488464-how-to-know-if-you-are-low-on-vitamin-b/. If you read all the way thru it also gives “nausea”.
    I hope something above helps.

    Answered by  IAW on
    •  IAW on

      Sorry the B deficiency was corrected by a B100 complex. If you are already taking a multi vitamin then this may not be the answer OR and this is just my opinion, the D is causing a “short term” Vitamin B shortage. You might need more than what is in the “multi” if taking one.

      Answered by  IAW on

Recent Discussion

Popular Questions