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Hi! I am just wondering if the 25(OH)D test is always reliable? I suffer from chronic illness and I feel worse now than I did during the summer. I had the 25(OH)D test done recently and it came back at 146 nmol/L. I have been supplementing with vitamin D for some time but I have not taken the same dose every day so I don't know how much I have taken on average. Some days I would take 5000 IU or even 10 000 IU and then I would stop for a few days. Does my results mean that I am definitely not deficient in vitamin D? I live in Sweden by the way and I weigh about 150 lbs. Thanks in advance.

Asked by  C on October 27, 2017

Answers
  •  C on

    See title

    Answered by  C on
  •  IAW on

    We recommend 50ng/ml(125nmol/l) as a healthy level to maintain at 150 lbs. So you are just slightly above that. If you have a chronic illness(s) then you might need more vitamin d or higher levels.
    IF you are saying you took vitamin d over the summer and got some sunshine, we are far enough into fall that your levels have probable dropped already. Vitamin d levels drop by half every two weeks IF not replenished!
    IF you are saying you feel worse taking vitamin d, then that is a different story.
    So if it is the first scenario then try and take 10,000iu everyday and see what happens. It would also help me to know what chronic illnesses you are dealing with and any medicines you might take. If serious enough, you may want to take more than 10,000 iu but I would really like to know the above information before I suggest taking more than 10. You really have to take it like a medicine and take it daily and everyday.

    Answered by  IAW on
    •  C on

      Thank you so much for your reply! I truly appreciate it. I didn’t take any vitamin D during the summer, I don’t know exactly when I started taking it but probably in August. The weather was cloudy or rainy most days this summer where I live but I really made an effort to spend time outside around noon every day when the sun was out. I have been very ill for many years but still have no diagnosis, I personally feel that some of my symptoms point towards hypothyroidism and I did get to try a medication containing natural thyroid hormones a while ago (even though all labs were within range), but my TSH got very low so I was advised to stop taking it. I don’t remember exactly how I felt when on the medication but most of my symptoms remained the same. I suffer from edema, IBS, chronic headaches, fatigue, insomnia, anxiety, a constant flu-like feeling, slow wound healing, dizziness and so on. I started feeling a lot worse a few weeks ago and it scares me so I have stopped taking most supplements but I still feel about the same. I have taken similar doses of vitamin D in the past without any ill effects. Some of my symptoms always worsen during fall and winter, for example the anxiety and eczema but I can’t remember ever feeling this poorly before. I find your suggestion to take 10 000 IU daily very interesting, do you think it would be worth a shot? I eat a healthy diet and have been taking lots of supplements for a long time so I don’t know what else I could try.

      Answered by  C on
  •  IAW on

    Make sure you read https://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. It is very important. A lack of magnesium can cause a lot of issues. You cannot rely on a magnesium blood test to tell if you are deficient. It only measures the 1-2% in your bloodstream and not total body stores. Taking Vitamin D can sometimes cause magnesium to go low and symptoms will get worse or you will get new symptoms. Taking Vitamin D should only make you feel better. If you feel worse then it is usually lack of magnesium OR in some people it can cause hypercalcemia. Your symptoms at this point do not fit in that category. Was one of your supplements magnesium? IBS people also have to be careful how much they take because sometimes it aggravates the IBS.
    I have also seen a lot of Vitamin D deficiency cause low B12. Did anyone test you for that?
    I would try the 10K a day and in eight weeks reevaluate yourself. Then come back and let me know how you feel and if anything has improved. So to answer your question it is very well worth a shot. No one knows at this point how much Vitamin D it might take to “work your way out” of a disease state.
    Let me know if you have any more questions!

    Answered by  IAW on
  •  C on

    I have been taking a magnesium supplement for a long time, about 600 mg daily. I have always made sure to take only the forms that are supposed to have good bioavailability and I split the dose up to improve absorption. But maybe I should back off a little bit. I don’t think I suffer from hypercalcemia because my serum calcium level has never been elevated, it has always been in range but slightly on the low side. My B12 level has been elevated the last few times that I have checked. I have itchy skin too and lots of allergies, forgot to mention that. I believe it is all connected somehow. I will try the 10K and it will be interesting to see what happens. Thank you very much again for your help.

    Answered by  C on
  •  IAW on

    Your welcome and please let me know what happens!

    Answered by  IAW on

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