Hello,has anybody experience with fibrodysplasia in children. Does anybody know about treatment FD using high dosage Vitamin D3 and calcium? My 6 years old nephew is diagnosed with CFFD ( fibrous dysplasia, so far diagnosed in his skull).
Is it possible to stop the growth of FD applying high doses of Vitamin D and calcium instead bisphosphonates?
We are looking for a centre where his disease can be fully diagnosed and where he can start treatment.
Kind regards Ewa