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Hello,has anybody experience with fibrodysplasia in children. Does anybody know about treatment FD using high dosage Vitamin D3 and calcium? My 6 years old nephew is diagnosed with CFFD ( fibrous dysplasia, so far diagnosed in his skull). Is it possible to stop the growth of FD applying high doses of Vitamin D and calcium instead bisphosphonates? We are looking for a centre where his disease can be fully diagnosed and where he can start treatment. Kind regards Ewa

Asked by  Ewa on September 21, 2015

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