For many years now I'm experiencing burning-like sensation on mostly on my neck toes and fingers. It is worsening all the time, but MRI and EKG that doctors sent me to, came back normal. For some time I took very big dosage of Parabentin, which didn't affect me even slightly. Now they gave me duloxetine which is Antidepressant, and while it doesn't help me with the sensation it makes me feel dizzy and I'm having mini panic attacks now and then so I don't want to continue taking it. Now I found information about Vitamin D deficiency that can cause exactly the same problems I'm having, like the sensation that I mentioned, sleeping disorder (it's never enough for me), some sex problems (usually that I just don't want any sex). I checked my D levels and it's showing 11 ng/ml while minimum is 20. So could it be that for all that time I was having vitamin deficiency problem? And if yes, what should I do? My DR says there's no connection between D and nerves, so she wont help me with that, she just isn't aware.

Asked by  skolzashiy05386100 on August 29, 2015

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  • skolzashiy05386100
    Participant
     skolzashiy05386100 on

    See title

    Answered by  skolzashiy05386100 on

  • IAW
    Participant
     IAW on

    Just so you know, I do not know what Parabentin is because a Google search shows me things in a foreign language.
    So yes it could be low Vitamin D levels causing your medical issues. The only way to find out is to get some, take it, get your levels to a minimum of 50ng/ml or slightly higher not 20ng.ml. I find it very strange that your doctor is not even trying to treat your deficiency because you are even below where the range starts. So I hope wherever you live you can get over the counter Vitamin D3 or be able to send away for some.
    The upper end of the range is 100ng/ml and it is safe to take 10,000 iu a day. So you may want to take somewhere between 5000 and 10,000 iu a day.
    Now you also need other vitamins and minerals to go with the D and you can find out about them here at http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. Please pay close attention to the magnesium section. You need to take somewhere between 500 – 800 mcg a day. (Do NOT get magnesium oxide!) This may also be a lot of your issue too because the human body needs a lot of magnesium to operate efficiently.

    Answered by  IAW on

  • skolzashiy05386100
    Participant
     skolzashiy05386100 on

    I’m sorry it’s Gabapentin not Parabentin and sometimes called Neurontin. http://www.drugs.com/neurontin.html
    Thank you very much for your fast reply!
    I live in Israel and it’s a sunny country, but still somehow I don’t get enough vitamin D here.
    As for other vitamins, do you think I could just get some kind of multivitamin package that will give me all the rest of the vitamins?
    When taking 10000IU per day of D3, how much time should I wait before going to check it’s levels so it will be enough time for it to take effect? And when it’s normal, should I take less to maintain or I can continue taking the same amount?
    Again thank you very much! If it will solve my problem, it will change my life! My condition is becoming so extreme, that I just feel desperate! But now I have hope!

    Answered by  skolzashiy05386100 on

  • IAW
    Participant
     IAW on

    It is why the Vitamin D Council exists because even if you live at the equator you have to go out in the sun enough to get enough vitamin D. If you work inside all day this is very hard to do.
    As for the multi vitamin you will have to investigate. Pay attention to Vitamin A and if there is too much “preformed’ Vitamin A, then do not get it. I do not think you will find one that has enough magnesium, so you will have to add to it. Getting any K or K2 might also be an issue. This company has several formulations with Vitamin D that you can check out https://www.biotechpharmacal.com/catalog/category/vitamin-d/.
    Recommended maintenance is 5000 iu but if that is not enough for you then you may have to go between the 5000 and 10,000. The 5000 iu is based on the average weight of 150lbs. If you are tall or weigh more, you may need more. I would give it at least two months before retesting. If you do not reach 50ng/ml by then please post back.
    Good luck and let us know what happens!

    Answered by  IAW on

    • skolzashiy05386100
      Participant
       skolzashiy05386100 on

      They don’t seem to sell these bigger dosages here in Israel! The maximum dosage that I found was 1000IU, and everyone looked weird at me when I asked for dosages like 10000 or at least 5000! If I buy the 1000 dosage, i will have to take 10 capsules per day so it will be sufficient only for 10 days..and it’s not cheap. I bought it online (is “carlson” a good brand?) but it will be here only in two weeks or so.
      Is there a way for me to tell my doctor about all this Vitamin D story? As I understand, the science is new, and most doctors aren’t aware about all this. But I can’t just say “you should read about this”..

      Answered by  skolzashiy05386100 on

  • IAW
    Participant
     IAW on

    Well you could go back to the doctor and ask why if the minimum blood level for Vitamin D is 20ng/ml then why are you not being treated? If they agree to treat you then they may give you D2 and not D3. Some overseas countries are using prescription D3 and others are not. (We do not even have prescription D3 here in the USA.)
    Taking ANY amount in the meantime is preferable than none at all. So if you can go get the 1000 iu and start taking 2 or 3 a day that would be great.
    Then there is the old fashion way of going outside, at noon or there about and exposing as much of your body as possible to the sun. This would add to the supplements you would take. Then there are the weekends or non work times that you could go out and sunbathe. For the most part just face and arms will get you some “d” but you really need to do larger areas like your back and/or legs. The more surface area the better!
    Carlson’s is a good company. If you find it to be cheaper you could take 50,000iu once a week but daily is better if you can.

    Answered by  IAW on

  • IAW
    Participant
     IAW on

    I do not know if this would help the doctor(s) http://www.grassrootshealth.net/media/download/scientists_call_to_daction_020113.pdf.

    Answered by  IAW on

    • skolzashiy05386100
      Participant
       skolzashiy05386100 on

      Thank you very-very much for your answers! We actually do have prescriptions of D3 here, and tomorrow I will see my doctor and ask her to give me prescription for D3 drops. With drops I can reach desired dosage by combining them and prescription gives me a big discount in pharmacies. I will test my vitamin levels soon and go from there and I will post here results I get from D3 treatment.
      Again I really appreciate the time you dedicated to answer my questions, and I’m grateful that site like this even exists!
      Thank you very much!

      Answered by  skolzashiy05386100 on

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