If your calcium levels are that “low” you need to be really careful. (I am not a doctor.) It is Vitamin D that helps calcium absorb from the intestines in order for the body to use it. So lack of Vitamin D is most likely causing this.
You said your D level is 14. Was that measured as ng/ml or nmol/l? If you do not know, let me know what country you live in.
Now if there is enough calcium in your diet, then just taking the Vitamin D might then increase those calcium levels. If not and at ANY POINT you start with the following symptoms, then stop the Vitamin D and you may need to get emergency help because low levels can be life threatening.
The symptoms of hypocalcemia are/can be muscle spasms/twitches, numbness and tingling of your fingers and toes or around the mouth (pins and needles), depression, irritability,insomnia, very low levels may cause confusion, disorientaion and heart irregularities. So please be careful!
I will assume that the “tetralogy of fallot” at this point will not cause any issues but again I am not a doctor.
Under your circumstances, I would suggest you start with 5000 iu a day of Vitamin D. If after a week it has not created any new symptoms, then double that to 10,000iu a day for eight weeks. At the end of eight weeks you need to retest no matter what. If the doctor will not, then buy a test kit from the VDC. If you weigh a lot more than 150lbs, let me know. The more you weigh the more you have to take.
Please also read http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. It is VERY important. IF there is not enough magnesium in your diet, the Vitamin D will probably cause symptoms. Some people don’t need to supplement and other’s need a supplement. You particularly, might also need a calcium supplement (no more than 500mg a day) and that is why I talked about the low calcium above. Take the vitamin d co-factors very seriously.
If you start having any new symptoms or old one’s get worse, come back and tell me. Do you take any medications for “anything”?
Scoliosis can be caused by lack of Vitamin D.
If you have more questions, just ask!
OK I’ll try to be more accurate in my answers:
Anxiety, stomach issues – about half less severe as they were before. Quite bearable and manageable now.
Back pain – huge improvement.
Palpitations – almost gone
Depression – I’m not feeling it anymore
Eyes – I can’t find difference, but I don’t mind wearing sunglasses. It’s not something that bothers me much.
Weight – I gained 2 kg. Not much but I’m not really trying, so it’s fine.
Before I answer your question, I would like to know if you still have any of these symptoms or problems? Anxiety, back pain, stomach issues, depression, eyes hurt/sunlight bothers them, heart palpitations and are you the same weight or were you able to gain some weight?
Did your wife ever get tested?
You said he has “been emotional in school, constantly crying, always moving that seems he cannot control his body movements- he kicked one of his classmates unintentionally.” This sounds like it just started after giving him the Vitamin D??? If so then I think he is probably missing a co-factor. You can read about them here at http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. A lack of magnesium might cause Irritability or anxiety, Nausea, Headaches, Insomnia, Fatigue, Muscle cramps/twitching, Weakness and constipation. (You have to then take that and translate it into how a 3 year old might display these symptoms if they cannot verbalize them.) Bio Tech makes this product https://shop.biotechpharmacal.com/collections/vitamin-d/products/d3plus-1 which contains the important co-factors. You can even break the capsules open and mix it in some favorite food. Always give Vitamin D with food that has some fat in it for better absorption.
I think until you can get some magnesium in him, I would decrease the D down to 1000iu a day. After he has had some magnesium for several days, then try to increase the D again. If none of this works, then come back and tell me.
I really doubt this is the case but the symptoms of hypercalcemia include: feeling sick or being sick, poor appetite or loss of appetite, feeling very thirsty, passing urine often, constipation or diarrhea, abdominal pain, muscle weakness or pain, feeling confused, feeling tired and bone pain. If you notice any of these symptoms, stop the Vitamin D.
Please also be aware of HYPOcalcemia (not enough calcium). The symptoms of hypocalcemia are/can be muscle spasms/twitches, numbness and tingling of your fingers and toes or around the mouth (pins and needles), depression, irritability,insomnia, very low levels may cause confusion, disorientaion and heart irregularities. Any mineral going too low can be life threatening. Vitamin D is what helps calcium absorb from the intestines. If there is not enough in his diet, his levels could go low.
I really think it is because of a lack of magnesium but I am not a doctor and I can’t physically see your child.
If you cannot get him tested in Canada the VDC does sell test kits.
So to recap if those symptoms just started I think it is the D and you should cut back until you can get the magnesium and see if that helps. If you can get that all under control then you should probably be aiming for 5-6000iu a day. Test in 8 weeks from when you started the full amount. Then come back and let me know what his level is and how he is doing.
If you have anymore questions, just ask!
First this is very important to read http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. Vitamin D uses a lot of magnesium and I suspect this might be what is causing the “drowsiness” and anxiety. Symptoms of low magnesium can be Irritability or Anxiety, Nausea, Headaches, Insomnia, Fatigue, Muscle cramps/twitching, Weakness and Constipation.
Hypercalcemia can also cause tiredness but you are not listing any of these following symptoms which include: feeling sick or being sick, poor appetite or loss of appetite, feeling very thirsty, passing urine often, constipation or diarrhea, abdominal pain, muscle weakness or pain, feeling confused, feeling tired and bone pain. A simple calcium blood test can decide this.
Bio Tech has a product called D3 Plus which contains some of the co-factors.https://shop.biotechpharmacal.com/collections/vitamin-d/products/d3plus You would have to add another 5000iu of just regular D to this to get to 10K. I also don’t know if this will be enough magnesium he may need more. If you buy a magnesium supplement, do not get “oxide”. Anything ending is “ate” is good. You may even want to reduce the Vitamin D to 5000iu a day until you get some magnesium in him. Do that for several days then add the D back up to 10K. If the drowsiness does not go away after adding magnesium, come back and tell me.
We usually suggest waiting 8 weeks, on any given amount of Vitamin D, before testing. Under the circumstances, though, I think it would be good to check and see how much his level has risen. After you test him, come back and let me know what his level is. For Autism we usually try for a level of 80ng/ml. He may need a lot more than the 10,000iu but it is hard to tell and hence why we recommend testing.
His beginning level is in the Adult Ricketts range just to let you know. So this may also mean he may need extra calcium unless he has a lot in his diet. So under these circumstances please be aware of the symptoms of hypocalcemia which are/can be muscle spasms/twitches, numbness and tingling of your fingers and toes or around the mouth (pins and needles), depression, irritability,insomnia, very low levels may cause confusion, disorientaion and heart irregularities.Low calcium levels or any mineral can be life threatening. Other things needed for bone health are magnesium, vitamin K, zinc, boron and silicon.
Let me know if you have any more questions.
Just so we do not have a misunderstanding. You said “yet depression comes, at times severe and last for shorter while, maybe a day.” Did you ever try taking the 20,000iu and then ADDING another 5000iu on those days that the depression comes again? OR maybe you should try 25,000iu a day and see if that will stop it from coming at all.
Dr. Cannell, the doctor that runs this website one said “Some readers have written that they require 50,000 IU/day to alleviate depressive symptoms, but that should only be done under the care of a knowledgeable physician with frequent 25(OH)D levels, as such doses may cause toxicity.” Maybe you fall into this group!
I have been in the most difficult phase of my life, unrelated to health or mental illness, therefore I am OK with the current status. It is enough for me that I am not taking those Psychiatric medicines with terrible side effects. I think the withdrawal symptoms may still be on, we never know. I am under tremendous pressure though.
I took only once 5000 iu but don’t remember what happened, the effect. Yes I am still taking Vitamin D3 20000 iu, once I tried to reduce it to 10000 iu dosage but I was not comfortable so I increased it again. Maybe later on, after sometime I will check Vitamin D3 levels and let you know. Yes, we had long conversation which has given tremendous results for me. Yes I also wish for Depression free phase, hope it happens soon. You have always been so kind.
Well I wished you were totally better, that would make me happier.
Here is a really good article about “K” at https://www.vitamindcouncil.org/the-synergistic-relationship-between-vitamin-d-and-vitamin-k/. Please read.
I think the “science” between the two is not conclusive yet. Meaning they may be “equal” in importance.
The K2 gets a lot of recognition on the internet because of a study in rats where it actually reversed Atherosclerosis in the rats. It was pretty impressive.
Are you still taking 20,000iu of Vitamin D? I realize we have had some fairly long conversations above. Did you ever try taking an extra 5000 or 10,000iu when you feel the depression coming on to see if it will make a difference?
How are you? Writing to you after long time. I know whatever help needed is received by me for my condition. I have seen improvement, there is reduction in side effects which was caused by Psychiatric medicines yet depression comes, at times severe and last for shorter while, maybe a day, I have learnt to handle that now but during that time it is horrible though no panic attacks for long time. Now coming to the reason why I am writing to you, I want to know is Vitamin K2 better than K1? Why?
Groovegal, I remember you, once you told your story again but cannot find you either. So I do not remember everything I wrote and suggested. (I could have written the 4000iu would not be enough after you posted but if you did not come back again you would not have seen that.)
So here is my understanding and correct me if I am wrong.
You have been taking the 4000iu since the end of January or beginning February so at most 4 weeks have gone by and you are still feeling really bad? If answer is yes do the following.
Double your intake of Vitamin D to 8000iu a day or if you can do 10,000iu a day. (With a meal or snack that contains “fat”.”) Your level was “very low”. Yes, low Vitamin D can cause anxiety. Most doctors treat a low level like yours with the equivalent of a minimum 8000iu a day. (We can even try more than the 10,000iu, if you want to but tell me first.)
You would have to take 40,000iu a days for months on end before you “may” become toxic. I emphasized “may”.
I usually also tell everyone to read http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. It talks about K in there. Now let me say it is the “low amount” of Vitamin D that you are presently taking that is the true issue. With that being said one person a long time ago said until they added the K with the D did their depression get better. If it was an absolute proven thing, I would have said so in the original posting. K directs calcium to bone and away from soft tissues where you do not want it. It also has other functions.
I also do not remember if in your original posting you talked about all the other low vitamin levels. If you are not taking multi at this point, I suggest you do.
Vitamin D helps calcium absorb from the intestines. If you are low in calcium then you may get any of the following symptoms. The symptoms of hypocalcemia are/can be muscle spasms/twitches, numbness and tingling of your fingers and toes or around the mouth (pins and needles), depression, irritability,insomnia, very low levels may cause confusion, disorientaion and heart irregularities. You can actually “pass” a calcium blood test AND still be deficient but will have symptoms.
If you increase the Vitamin D AND any of your symptoms get worse, stop taking it and tell. I try and warn people about low magnesium and it sounds like maybe I did. Most people do not have an issue with the calcium but again there was that one person a long time ago. Vitamin D can actually make ANY mineral go low.
Let me know what you are going to do. Then at a minimum come back and tell me how you feel in two weeks or come back every week.
Once you respond back, I will respond again so make sure you check.
I am assuming your daughter is an adult.
Her levels are “extremely low”. They are in the adult rickets (Osteomalacia) range. Although it seems like a lot, when you are that deficient it takes “a lot” of Vitamin D upfront to correct the situation. So her doctor is correct and they should get a “pat on the back” for giving her enough. (Usually doctors do not give enough.)
We here at the VDC believe in maintaining a “healthy” level of 50ng/ml(UK=125nmol/l). At levels below 40ng/ml(100nmol/l) your risk for cancer and autoimmune disease rises “dramatically”. I assume they told her to do this for a certain amount of time and then get retested? The NHS(and USA) recognize a much lower level as being healthy.It is not. So once she is treated and better, she should take NO less than 5000iu a day or else her levels will plummet again.
You/she should read http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. It is very important!Take it seriously. Besides those in that posting, she may want to take some supplemental calcium at the very least, for a while. At that low, she probably needs to repair bone.
As for side effects. If any of her present symptoms get worse or she adds any new ones, come back and tell me. It usually means a vitamin or mineral deficiency. Even if her calcium levels test within range, they could still go low if she does not have enough calcium in her diet under these circumstances. Symptoms of hypocalcemia are/can be muscle spasms/twitches, numbness and tingling of your fingers and toes or around the mouth (pins and needles), depression, irritability,insomnia, very low levels may cause confusion, disorientation and heart irregularities. This can be life threatening and she should seek emergency help.
I do not know what level the NHS will treat to, so if you need more help later on, just come back and ask!
If you have more questions, just ask!
First time around I should have said that scientific studies now show that loading doses are not the best thing to do, rather the human body does better on “daily” doses. (Having said that, if you one day forget a dose, then double it the next day.) Always take with a meal or snack with fat in it so it will absorb.
At https://www.vitamindcouncil.org/health-conditions/depression/ is a “Health Summary” on depression. That is where you should start your reading. It is in there that they explain sometimes “studies” are failing or not showing any treatment affect, is because they are not using high enough amounts of Vitamin D. So keep that in mind.
I would keep getting support from Psychiatry, while you work on your levels. I have had many people come here and tell me they have anxiety and depression and some of them have other symptoms also. You are the first to say that you had suicidal thoughts. So again, if you start to feel worse taking the Vitamin D, then you need to stop the Vitamin D and tell me. Vitamin D can cause magnesium to go low, some of the B Vitamins to go low and many people report a B12 deficiency with their low D levels. Most doctors rarely look at the potential for vitamins or minerals to be a possible answer for someone’s medical problems.
Too make a long “success” story short, I had someone a while back who was on two-three medicines for his anxiety and depression. We conversed back and forth over quite a few months and in the end he no longer took any medications and took 20,000iu a day to feel well. (So keep this in mind, it may take more than the 8000iu a day to make you feel better but we have to start somewhere.)
Many people find that once they take enough Vitamin D, they no longer “burn” as easily when exposed to the sun.
If it helps come back and talk to me as much as you want. Knowing your circumstances, maybe you better come back in 4 weeks and tell me how you feel. If you are not making some progress by then and hopefully sooner, than we should rethink the amount.
May you feel better soon!
It was just so I could show you the clinical knowledge summaries page of recommendations for load dosing in the UK/more specifically England, it does state below 30 nmol/L should be considered deficient. Scotland not so. As I became suicidial I am now receiving support from Psychiatry do you have any links to studies that demonstrate the link between vitamin D and anxiety/depression as I feel my doctors think this deficiency is just not important at all or relevant
Thanks for the reply 🙂
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