Asked by sarth22031779636000 on August 14, 2016
IAW on August 14, 2016 at 11:40 am
Below 10ng/ml and you are in the Osteomalacia range, adult rickets.
You should read http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. It is very important.Besides calcium bones need magnesium, vitamin k, zinc, boron and silicon. Calcium is not covered in the above link but you may need supplemental calcium. Vitamin D helps calcium absorb from the intestines.At any point if there is not enough of a mineral, you will start to get “symptoms”. So the “tingling in your feet”, was probably low magnesium since it got better BUT low calcium can also cause this to happen.
Most doctors do at least 8 weeks of treatment and then at the end they should check your levels again to make sure they have risen. We promote maintaining a minimum “healthy” level of 50ng/ml. So if for example at the end of 8 weeks you have reached that level, then you should take a maintenance dosage of 5000iu a day OR else your levels will plummet back to where you started. If they have not risen much or you have not made it to 50ng/ml, then you should let me know. (I am pretty sure with the amount you are taking that your level will be very “high”.)
The bone pain you started with 3 months ago was due to the low Vitamin D and no calcium being absorbed to maintain your bones. Vitamin D helps calcium absorb from your intestines.
Too much Vitamin D can cause hypercalcemia. You are taking way too much. I could see 60,000iu ONCE a week but not everyday. The symptoms of hypercalcemia may include increased thirst and urination, belly pain, nausea, bone pain, muscle weakness, confusion, and fatigue. As you can see it can also cause bone pain. Do you have any of the other symptoms???
So it is hard for me to say right now if you are just having original bone pain that has not gotten better yet OR because you are taking too much D, that you now might have hypercalcemia. A doctor could do a blood test for calcium levels to see if they are too high. If those levels are high, then it is because of too much Vitamin D. NOW if the levels are within the normal range, that DOES NOT MEAN you do not need calcium. If you are not getting enough calcium (and the other factors listed above), then the bones will have a hard time repairing themselves.Answered by IAW on August 14, 2016 at 11:40 am
sarth22031779636000 on August 14, 2016 at 12:00 pm
Thanks for prompt reply.
I was taking 60k iu every day.
The pain i was getting before treatment was hands neck and legs.
This has gone.
But since last few days my shoulder bone aches and bone above buttocks also ache.
I am taking 16 mg elemental zinc 1000 ng elemental calcium since last 2 weeks.
Can my back pain be due to excess vit d?
It has already been 9 weeks since vit d supplementing.
But I was not prescribed calcium magnesium and zinc by my doctor.
I did research from your forum and started supplementing other cofactors since last 2 weeks.
How long should i continue taking calcium and other cofactors?Answered by sarth22031779636000 on August 14, 2016 at 12:00 pm
sarth22031779636000 on August 14, 2016 at 12:05 pm
And i felt thirsty and lot of belching along with back pain since last 2 days.
Are these symptoms associated with hyper calcemia?
As I started supplementing with 1000mg elemental calcium just since 2 weeks.Answered by sarth22031779636000 on August 14, 2016 at 12:05 pm
IAW on August 14, 2016 at 2:15 pm
Are you sure you did not misunderstand the doctor and he wanted you to take 60,000iu once a week? You are taking way too much Vitamin D and you should STOP taking ANY Vitamin D and have your levels checked. You have symptoms of hypercalcemia bought on by too much Vitamin D. I would also stop the calcium supplement. (If the doctor really prescribed that much, he or she was very wrong.)
The symptoms of hypercalcemia include increased thirst and urination, belly pain, nausea, bone pain, muscle weakness, confusion, and fatigue. You have several of these symptoms.
As for the runny nose and balance, maybe the hypercalcemia is making that worse or making it hard to recover from those symptoms.
Someone should check your levels, you should not take anymore Vitamin D until your levels are below 100ng/ml. Then you should resume taking Vitamin D at a MUCH LOWER level.Answered by IAW on August 14, 2016 at 2:15 pm
sarth22031779636000 on August 14, 2016 at 2:58 pm
I should test my vitamin d and calcium levels first.
Is it possible in 8 weeks my levels would have exceeded 100 ng/ml?
How long will it take for the levels to get normal?
Is 1000 mg elemental calcium per day way too much?
How much is recommended supplemental calcium per day?Answered by sarth22031779636000 on August 14, 2016 at 2:58 pm
IAW on August 14, 2016 at 3:37 pm
Yes, taking 60,000iu of Vitamin D per day and your levels are most likely over 100 and probably a lot higher than that. If you did not have any symptoms of hypercalcemia, then I would not be as worried but you do.(Keep in mind, I am not a doctor.)
If you get tested and get a level than you can figure “approximately” the following. That your Vitamin D levels will be half of what they were every two weeks.For example if you got tested and the level was 300ng/ml then in two weeks it should be about 150ng/ml. (150ng/ml is the “official” safe upper limit.) This is only if you stop the Vitamin D altogether AND also do not get any sunshine.
I hope you understand that it is NOT the supplemental calcium you are taking that is giving you the hypercalcemia. It is the “way to much Vitamin D” that is causing a dysregulation in that system.
So if your diet has enough calcium in it and you take/ get enough Vitamin D, the D will help absorb the calcium from your intestines and use it throughout your body. If you really do not think there is enough in your diet, then maybe at most 500mg. The doctor that runs this website explained once that he felt the high amounts of supplemental calcium that are/were promoted as needed for “strong bones and health” was not really needed. What was needed is supplemental Vitamin D so then the calcium in one’s diet would get absorbed and used.
Now sometimes when you have very low levels of D like you did, then some doctors prescribe calcium to go with it. I had someone once that was not told to take any and they became “HYPOcalcemic”. This can be very dangerous and life threatening. Usually there is a “pins and needles” sensation in your extremities and around your mouth and also other symptoms.Answered by IAW on August 14, 2016 at 3:37 pm
IAW on August 14, 2016 at 5:31 pm
“Can vitamin d deficiency cause sinus problems?” Yes! please see http://www.vitamindcouncil.org/?s=sinus&submit=Submit#blog.
Yes please let me know how you are doing.Answered by IAW on August 14, 2016 at 5:31 pm
sarth22031779636000 on August 15, 2016 at 9:10 am
I went through my blood report before 2 months when I started treatment.
My calcium levels were 8.9 then, so pretty normal.
I took supplements invain i think without consulting physician.
Are 8.9 normal?Answered by sarth22031779636000 on August 15, 2016 at 9:10 am
IAW on August 15, 2016 at 1:13 pm
A calcium level of 8.9 is within the normal range. So it was at least “normal” before you started.
Taking too much Vitamin D will not cause any permanent damage, as long as you stop taking it until your levels return to normal. So my understanding now is that you “treated yourself” and did not go to a doctor? It’s OK, you just took too much. You should have asked me how much to take 9 weeks ago!Answered by IAW on August 15, 2016 at 1:13 pm
sarth22031779636000 on August 15, 2016 at 1:53 pm
Are dizziness and fatigue related to vit d deficiency?
Or there can be an other underlying medical condition?
My blood work was very normal .
Even thyroid diabetes everything was normal..
still i dont feel the kind of energy i had 3 months back.
How long will it take to resolve?Answered by sarth22031779636000 on August 15, 2016 at 1:53 pm
IAW on August 15, 2016 at 4:27 pm
Your level back before treating was veryyyy low. Dizziness and fatigue can absolutely be caused by a Vitamin D deficiency. You do not necessarily have another “underlying condition”.
Now you are confusing me when you say “still i dont feel the kind of energy i had 3 months back”? Do you me before you started treating and now you feel worse OR do you mean in the early part of treatment you felt better than what you do now? Hypercalcemia can make you feel tired too.Answered by IAW on August 15, 2016 at 4:27 pm
sarth22031779636000 on August 15, 2016 at 4:36 pm
I mean’t before the deficiency symptoms start appearing.
After treatment they have improved a lot but still not 100 percent.
My back pain still there since 4 days.
I have stopped calcium now.
How long will it take for full recovery?
Does vitamin d deficiency symptoms take so long to resolve completely?Answered by sarth22031779636000 on August 15, 2016 at 4:36 pm
sarth22031779636000 on August 15, 2016 at 4:48 pm
I still have little wet nose and I am taking cinnarazine and dimenhydrine for dizziness prescribed by ENT.
ENT says that dizziness is related to signal imbalance between ear eye and brain .
Should I continue these tablets or stop them?
Physician in my country say my symptom hace nothing to do with vit d.
They say i am too young to show symptoms for vitamin d.
It only occur in elderly.
A level 9 is not low for them.
So i self medicated out of frustration.
You are my last hope.
When should I start taking vitamin d again?
As for now I have stopped.
Maybe i got low vit d due to darker skinAnswered by sarth22031779636000 on August 15, 2016 at 4:48 pm
IAW on August 15, 2016 at 5:32 pm
The Vitamin D Council and several other organizations exist to try and spread the information that human beings are not getting enough Vitamin D and it is making us all very sick. You do not have to be old. Lifestyles today keep us in doors a lot. You are correct in that if you have darker skin then it will take you longer than a lighter color person to make Vitamin D from sunshine. If you live too far from the equator, you cannot make much Vitamin D, if any, in the winter time.
You asked when you should start taking the Vitamin D again? How about we try this. Come back and let me know when your “shoulder bone and bone above buttocks” stops aching. Also when the “thirsty and lot of belching along with back pain since last 2 days” goes away/stops. Just because you stopped taking it, does not mean you do not have any in your system. (Without any blood work, I really do not know how high your level is and makes it harder for me to make suggestions.) Right now I am going to guess and say a month without any. Let me know when the symptoms stop.
I just looked up the side effects of cinnarazine and dimenhydrine and they say they can cause “dizziness”. How long have you been taking them for? Before taking any Vitamin D?Answered by IAW on August 15, 2016 at 5:32 pm
sarth22031779636000 on August 15, 2016 at 6:45 pm
I started taking cinnazarine and dimenhydrine just 2 weeks back.
My dizziness is 90 percent gone.
Should i continue magnesium supplements?
Zinc I can get from diet I think.
But for magnesium rda is quite a bit high to get from diet.
Please advise me on zinc and magnesium.
Earlier I was taking a tablet which contain calcium mg zinc in combination.
But since i stopped calcium i will have to buy magnesium glycinate.
Do I need to buy zinc sulphate also?Answered by sarth22031779636000 on August 15, 2016 at 6:45 pm
IAW on August 15, 2016 at 7:07 pm
Just get the magnesium.
I do not know if I am thinking about this “too much”. If the dizziness was/is caused by the Vitamin D deficiency, maybe it will just take more time to have an affect on that symptom and the runny nose. Yesterday I also “googled” dizziness and vitamins and runny nose and vitamins to see if it would come up with something other than Vitamin D. I dd find these under a B12 deficiency. So you could research that or if you can just get a B12 supplement and try it to see if it changes anything. You might not need to take it forever. Sometimes I wonder/speculate that if our bodies are under tremendous assault from something, in your case low Vitamin D, that just maybe a little extra vitamins or minerals may be necessary to recover.Answered by IAW on August 15, 2016 at 7:07 pm
sarth22031779636000 on August 15, 2016 at 8:39 pm
Dizzines has gone by 90-95 percent.
Runny nose is not that runny as before.
But I want 100 percent cure.
lets see for a month more.
Have you seen dizziness in other vit d deficient patients?Answered by sarth22031779636000 on August 15, 2016 at 8:39 pm
IAW on August 16, 2016 at 5:10 am
I have researched B12 a little. When I did I found that “In contrast (to the USA) the lower limit in Japan and some European countries is 500-550 pg/mL and is based on the level which causes mental manifestations such as dementia and memory loss.”
So you may want to rethink. I also seemed to remember that some “types” of B12 are better than others.
I absolutely see that symptom (dizziness) a lot in vitamin d deficiency.
How much magnesium were/are you taking?
Last but not least, do you weigh a lot more than 150lbs? The more you weigh, the more Vitamin D one has to take.Answered by IAW on August 16, 2016 at 5:10 am
IAW on August 16, 2016 at 9:53 am
From http://www.globalhealingcenter.com/natural-health/whats-absorbable-form-b12/Methylcobalamin, Methylcobalamin is the most bioavailable form of B12 and the most absorbable form of delivery is by “sublingual”. Did you take it “sublingual”?
I would take no less than 400mg of magnesium. (Never get magnesium oxide.)
Yes, low Vitamin D can cause allergies. I have known some people to cure their allergies after taking D but I just had one person lately who has seen great improvements in all their symptoms except they still have allergies. (Maybe over a longer period of time, their’s will lesson also.)
Your weight at this point is a good thing and is why it took you awhile to have symptoms of overdose.
Let me know when the other symptoms have stopped.Answered by IAW on August 16, 2016 at 9:53 am
sarth22031779636000 on August 16, 2016 at 11:30 am
Yes i took sublingual methyl cobalamin.
Thanks a ton for always helping me.
I think maybe food alkergies are causing runny nose which in turn is causing back pain.
Also my basophil count is high which is an indicatir of food allergies I read on google.
What do you think?Answered by sarth22031779636000 on August 16, 2016 at 11:30 am
sarth22031779636000 on August 16, 2016 at 6:51 pm
Yes the pain maybe due to excess vit d and calcium as it has just developed 5 days back.
Runny nose cannot but food allergy can cause .
I think it wiill inprove in sometime.
As for basophils I researched on my own.
I will ask doctor.Answered by sarth22031779636000 on August 16, 2016 at 6:51 pm
IAW on September 8, 2016 at 12:34 pm
Hey Sarth, I was thinking about you the other day.
I last said stop taking the D and “Come back and let me know when your “shoulder bone and bone above buttocks” stops aching.” “Also when the “thirsty and lot of belching along with back pain since last 2 days” goes away/stops.” Did all of those symptoms go away? If not which symptoms do you have out of those symptoms and what symptoms do you have in general?
Your comment above makes it sound like you did not stop?Answered by IAW on September 8, 2016 at 12:34 pm
sarth22031779636000 on September 10, 2016 at 3:34 am
Those symptoms have gone.
But i still dont feel the kind pf energy that i had before deficiency.
Also the balance issue is getting better day by day but still not solved completely.
I just want to become healthy like before.
But it is taking a lot of time.
I am apprehensive whether this is a permenant damage to my health.Answered by sarth22031779636000 on September 10, 2016 at 3:34 am
IAW on September 10, 2016 at 5:43 am
It would be great if you could check your d level again. Can you do this soon? That way I will know if it is high or low at this point and we can go from there. (I do not want you going without any Vitamin D for too long or you will end up back where you started.)
From March thru October in Thailand, with Intense Sunshine the time needed to produce sufficient vitamin D is:10 minutes (light-skinned), 45 minutes (dark-skinned). From November thru February when there is Moderate Sunshine the time needed to produce sufficient vitamin D: 20 minutes (light-skinned), 60 minutes (dark-skinned).
This is based on being out during the hours of 10-2pm when the sun is “high” in the sky and your “shadow” is the shortest. This is when you produce the most Vitamin D. You also have to expose a large area of skin like your back not just your arms or face.
The only thing I do not know is this. You are a big guy. Usually if you weigh more than 150lbs (68kg), we recommend taking more Vitamin D. So for you a maintenance dosage of 6000iu instead of 5000iu.(Science does not yet consider your genetic makeup in any of this, so some people find they need a lot more than this to feel well.) The point is those above times are based on the 5000iu, so times may OR may not need to be increased for you.
Yes you have a lot of sun in Thailand but it will only work if you get out there and expose yourself.
The other things you can consider is taking a lower amount of Vitamin D and getting the rest from sunshine. Or if there are days you cannot get out, then take the supplement.
I do not think you have permanent damage but I do not think you are completely over the deficiency. If you have not already you could restart the calcium and see if that helps.Answered by IAW on September 10, 2016 at 5:43 am
IAW on September 22, 2016 at 7:24 am
Please correct me if I am wrong and make sure you answer all questions!
It sounds like ALL of the “hypercalcemia” symptoms have gone from too much Vitamin D?
Right now for symptoms you still have dizziness? Do you have any bone pain or fatigue which were symptoms in the past?
Now you have developed “tingling” again and where is it, in your feet?
Are you supplementing with any calcium or magnesium???
You asked above if you needed a maintenance dosage because you live in Thailand? I tried to give you a general idea of when and how much time you will have to spend outdoors to not have to take a supplement. The only thing I did wrong was you said you are 88kg and your maintenance dosage should be 8000iu and not 6000iu.
So will you be able to get enough of the “correct” sunshine? If not and you can get some of the “correct” sunshine, then you can do half supplement, half sunshine.
So let me know your answers and will go from there!Answered by IAW on September 22, 2016 at 7:24 am
sarth22031779636000 on September 22, 2016 at 11:16 am
I have pain in fingers and back on left side of body.
Tingling in left feet.
Motion imbalance in general persists.
No fatigue issue since long time.
Calcium and magnesium I have stopped.
Do I have sone other underlying medical issue viz. Neurological or ear issue?
Isnt 9.9 calcium normal?
Should i stop taking d supplement as my level are 134 ng/ml?Answered by sarth22031779636000 on September 22, 2016 at 11:16 am
IAW on September 22, 2016 at 12:58 pm
In your original posting you said ” I had tingling in feet but it went away after taking magnesium”. Maybe you should take the magnesium again? I do not know what to say about the “left side body pain”.
If the “imbalance” was caused by the deficiency, maybe it will take a while to get better. If it was not, then I do not know what is causing it. Are you still taking any medicine for it? Magnesium deficiency can also cause “dizziness”.
Your blood level of calcium is normal.
Is the 134ng/ml level without any supplements and very little to no sunshine? (Is that level still from the 60,000iu a day?) Now you said “Should I stop taking the d supplement as my level is 134ng/ml?” If you do not get plenty of sunshine like I described earlier in this question and answer, then that level will continue to drop.
So it is up to you. Get enough sunshine and you should be Ok. If you can only get some sunshine, then try taking 5000iu a day and get some sun to make up the rest.Answered by IAW on September 22, 2016 at 12:58 pm
sarth22031779636000 on September 24, 2016 at 10:31 am
I think as my d level has gone up to 134 ng/ml, my body might be using lot of magnesium.
The pain might be due to magnesium deficiency.
Should i re-start taking magnesium supplements?
What do you suggest?Answered by sarth22031779636000 on September 24, 2016 at 10:31 am
IAW on October 4, 2016 at 5:20 pm
Let me back up and explain something. When blood levels of magnesium, calcium and phosphorus are measured, this measurement can only measure the 1 percent that is contained in your bloodstream. It has nothing to do with how much is in your bones and the rest of your body. So you can actually have a shortage of any of those minerals and those blood tests will not show you. By the time the actual blood levels go low, you are in serious trouble and critically ill. (So the only thing you can do is if you think it is possible that you may not be getting enough and you have symptoms, then you should try and take some and see if it helps.) So try the magnesium and calcium to see if it helps any of your symptoms.
Now the following is only my opinion or thoughts. I do not know if you can actually equate a high Vitamin D level with the assumption that any symptoms that are left are not Vitamin D related. I just do not know. You would think that if it is not related to the Vitamin D then why has it gotten somewhat better?
Now let’s pretend for the moment the doctor is correct and you have Lyme. I have Lyme, so I know a lot.about it. I wished I had known about Vitamin D when I was diagnosed. I was also finally diagnosed 10 years after I believe I contracted Lyme.
Most Lyme testing, as far as I know, is still very unreliable so keep that in mind. Next it is my understanding that Lyme replicates itself by using magnesium. So therefore you can become very magnesium deficient from the Lyme a lone. (I never tested low on a blood test but an expensive test that actually looks at what is in your cells showed that I was very low.) Had I known at the time how important Vitamin D is to your immune function, I would have used a lot of it to see just how many “symptoms” I could cure with it before turning to anything else. So if it is Lyme it could be causing low magnesium and then take the Vitamin D which need a lot of magnesium and you could very well be low in magnesium. If it is Lyme you may have to keep your levels high for quite sometime to battle it.
Last thing is you said “your thyroid levels were fine”. Do you actually have the test result or results depending on how many thyroid tests they did? I know a lot about this too because Lyme can cause thyroid problems.Answered by IAW on October 4, 2016 at 5:20 pm
sarth22031779636000 on October 7, 2016 at 1:46 am
Yes my thyroid tests are normal.
I have given blood for lyme test.
Is lyme curable?
I think I caught lyme about 6 months back. I am worried to death.
I have started taking doxycyline 200mg per day.
I am taking magnesium and vitamin d also.
As you say blood tests for lyme are not reliable what can I do?
As doctor wont prescribe me meds.
which other antibiotic should I take?
So how is your lyme now?
Are you cured?Answered by sarth22031779636000 on October 7, 2016 at 1:46 am
IAW on October 7, 2016 at 5:23 am
Sarth you still do not understand. I need the actual thyroid numbers/levels!!! Many of the thyroid ranges are badly “skewed” and therefore being “within the range” does not mean anything!!!
I have another Q and A person that was taking 15,000iu a day and had a Vitamin D level of 60ng/ml. (She stopped taking the Vitamin D for a week before being tested so her level was probably slightly higher than the 60ng/ml.) After that she decreased the amount to 5000iu of Vitamin D a day. Her original level was around 12ng/ml. As soon as she dropped down to the 5000iu, she now has dizziness/vertigo. She had this symptom also when first diagnosed with the low level but it went away. I told her to increase the Vitamin D up to 10,000iu a day, to see if the dizziness will resolve.
This may help to understand the western blot https://www.lymedisease.org/wp-content/uploads/2014/08/Image13-link-pdf-brenner.pdf.Answered by IAW on October 7, 2016 at 5:23 am
IAW on October 7, 2016 at 11:30 am
Sarth your TSH level is fine. (Anything over 2.0 and I probably would have been suspicious.) I cannot comment on the T4 or T3 because I think these are what we call a “total t4 and a total t3” tests. Most doctors that are “up to date” on the latest testing to use do a TSH, Free T4 and Free T3.
Some people would say Lyme is curable and others say not. I think a lot of the symptoms that people actual get when they contract Lyme are actually either Vitamin D deficiency symptoms or hypothyroid symptoms.
How much Vitamin D are you taking now?Answered by IAW on October 7, 2016 at 11:30 am
sarth22031779636000 on October 7, 2016 at 11:42 am
At first my pain elevated after starting doxycyclin then it started reducing in 2-3 days.
Now I get some pain on and off.
Even dizzibess is going but my left side of body still feels a bit stiffAnswered by sarth22031779636000 on October 7, 2016 at 11:42 am
sarth22031779636000 on October 7, 2016 at 11:47 am
As you said one cannot rely on test for lyme and docs here are not well versed in clinical diagonosis of Lyme like US.
If i get a negative result they wont treat me for Lyme.
From your conversation I understand that I should continue taking vitamin d and co factors to relieve symptoms of Lyme.
Should I use combination of antibiotics or just doxycyclineAnswered by sarth22031779636000 on October 7, 2016 at 11:47 am
IAW on October 7, 2016 at 11:52 am
Did you ever have any of these symptoms all at one time: fever, chills, headache, fatigue, muscle and joint aches. When someone finally diagnosed me, I could remember having all of this and I thought it was the “flu” and never went to the doctor. In retrospect I think that is when I contracted Lyme. I absolutely had no “bulls eye” rash unless it was well hidden underneath my hair on my head.Answered by IAW on October 7, 2016 at 11:52 am
sarth22031779636000 on October 7, 2016 at 12:04 pm
Yes 1 month I was so sick dizziness muscle pain and lot of fatigue for a month.
My rash was small like pink pimple with small circle not bulls eye type.
I told all my symptoms to one of my dad’s friend who is cardiologist in New Jersey and he reccomnended screening for Lyme.
Doctors here have no idea and they are prescribing me stress and anxiety medicines
The cardiologist from US told me to go to neurophysician and do MRI also.
Hmm If the problem would have been neurological then ot would get more intense day by day.
My problem remains same in intensity.Answered by sarth22031779636000 on October 7, 2016 at 12:04 pm
IAW on October 7, 2016 at 1:08 pm
Standard protocol here in the USA if using doxy, is to treat with “Doxycycline (100 mg twice per day), for a range of 10–21 days for early localized or early disseminated Lyme disease”.
I do not know if your Dad’s friend is trying to say go to a neurologist in case it is not Lyme OR because it may be Lyme? If Lyme turns into “neurological” then pain is one of the symptoms. You can read here about neurological symptoms of Lyme at http://www.ninds.nih.gov/disorders/lyme/lyme.htm. So I do not know what to tell you about seeing a neurologist.
The 4000iu of Vitamin D is only going to be enough as long as you are getting sun too.If you are not getting enough sun then take 60,000iu once a week and keep in mind the past symptoms of too much Vitamin D.Answered by IAW on October 7, 2016 at 1:08 pm
IAW on October 7, 2016 at 2:30 pm
This was a long time ago, so here is my best recollection.
I started having some mental (depression) as well as physical symptoms and went to my physician at the time. He did a Lyme test but what I did not understand at the time was it was the cheapest and most unreliable test there is. The test came back negative. Like you said, then they just start treating you with anything which at the time was Amitriptyline. Things just got progressively worse. My son was diagnosed at a very young age with hypothyroidism and things were not going well for him. (We also suspect Lyme for him.) So I decided to read some books to see if I could help him in any way. Unfortunately what I found was all of my symptoms under hypothyroidism. I could not get any regular doctor or Endocrinologist to treat me, they said my level was not “high” enough and therefore I dd not have a problem. I then ended up going to an alternative health care physician who treated me for hypothyroidism and I felt better. He was also the first doctor to check my Vitamin D levels. As the years went on I had to switch doctors for one reason or another. So about the third doctor, and I was only sitting with him for a few minutes and I said I have hypothyroidism but it seems hard to control one minute I am OK and the next I do not feel well. He then said “I bet you have Lyme.” I said “No the test was negative”. He then said “None of the tests for Lyme are really any good.” Some of the other doctors had mentioned Lyme but I said I was negative. If they had only pursued what test I had or had more knowledge like the last doctor. Anyway I said I wanted to take the Western blot even knowing it may come up negative. He said he would treat me either way. Low and behold it was “positive”! (When I read about Lyme, I found a doctor that stated he was finding a lot of hormone problems, for example thyroid problems, in people with Lyme.)
I wish I had known a lot more about Vitamin D at the time but this website did not come along until later. So I will never know if I could have cured myself with very high amounts of Vitamin D or not.
So now you have my story. I take a lot of Vitamin D and thyroid medicine and from what I have seen of this world, my life could have been much worse than what it has been.Answered by IAW on October 7, 2016 at 2:30 pm
sarth22031779636000 on October 7, 2016 at 2:59 pm
Oh thats a sad story.
Sorry to hear that it took so long for docs to figure out your problem.
Thanks for sharing your story.
I am still young, so am bit apprehensive..
Forgive me if I asked a lot of your personal info.
My stage if i have lyme is still early disseminated so I think it will still take time for thyroid problems.
I think western blot is better than elisa though there are false negetives at some instances.
Doxy is working tor me I think.
Been getting better day by day after starting it.
Even if I dont have lyme taking antibiotics for 3 weeks would not do that massive harm.
Better to treat it now as results are not reliable.
And would continue vit d and cofactors for couple of months too.
Hope I get cured, still am unmarried ha ha.
Anyway I will keep you posted about my results and my recovery if any.
Thanks a ton.Answered by sarth22031779636000 on October 7, 2016 at 2:59 pm
IAW on October 8, 2016 at 6:44 am
Then maybe it would be best to try and see a neurologist now rather than later.
I have been rereading everything since you posted from the beginning and things are just confusing to me so I do not know how much more help I can provide. For example when you were originally taking the 60,000iu a day, you stated in your first post that “My brain fog and dizziness gone”. Then in the next posting you are talking about dizziness again. Lately I asked what your symptoms presently are and you said ” I have pain in fingers and back on left side of body and tingling in left feet.” Now you just posted “shooting pain… in palm fingers and feet”.
So obviously taking 60,000iu of Vitamin D is way too much for you to take but maybe a higher amount like 15,000-20,000iu might help. (I now your level looks OK but I am not sure it means anything if you are in some kind of disease state.) Then again maybe some of this is lack of magnesium AND/OR calcium. (I told you that levels tell you nothing.) Then again you could have Lyme or even some other kind of infection. I found this interesting http://www.healthline.com/health/methylmalonic-acid-test#Overview1. Maybe if you get to another doctor, you could ask for that test. I found it when I was looking up B12 and Lyme.Answered by IAW on October 8, 2016 at 6:44 am