Asked by DL3988835900 on September 17, 2016
IAW on September 17, 2016 at 1:09 pm
I would probably need a little more information.
The first time(s) you were treated were you given D2 or D3? (In the USA prescription Vitamin D is D2.) So when you say 60,000iu and a “different compound” is it perhaps D3 and if not what is it? (I suspect the first one(s) were D2 and you have now been given D3?)
Yes, the “wide spread aches” are from the deficiency. If your level is low enough you might even have Osteomalacia/adult rickets. (The Osteopenia might actually be rickets.)
“Is it possible that one form of medication doesn’t ‘work’ where as a different form does?” I would need the answers to the above questions, as best you can, to answer this.
Besides the “types” of Vitamin D what also counts is the amount given and most importantly that after treated you “continue” with a maintenance dosage forever. If you do not then your levels will plummet again because the human body needs a lot of Vitamin D3 every day to process all sorts of things.
So we here at the VDC recommend a maintenance dosage of 5000iu per day if you weigh around 150lbs. If you weigh more than that, you have to take more.This will usually keep people at a level of 50ng/ml (125nmol/l) and this is a “healthy” level. Any level below 40ng/ml and your risk for cancers and other diseases increases dramatically.Answered by IAW on September 17, 2016 at 1:09 pm
DL3988835900 on September 18, 2016 at 4:22 am
Thank you for your reply. All my treatments – I’m currently on the 4th – have been Vitamin D3. My doctor is at a loss to understand why the first resulted in an improvement, though not to sufficiency, and why the second two didn’t achieve any further improvement, but rather a decline in levels. In between treatments I have taken a maintenance dose of 2000iu daily, rather than the 5000iu the Council recommends. The first three treatments were of Thorens 25000iu twice weekly. Now on Fultium 20000iu x3 weekly. I appreciate the brand names may mean little in the USAnswered by DL3988835900 on September 18, 2016 at 4:22 am
IAW on September 18, 2016 at 6:07 am
Both of the products are D3. I looked them up to be double sure. (So there should not really be a difference there.)
Even though you have not said what your level was originally, I suspect it was extremely low.
The 2000iu was not enough to keep those levels “up”, they would have decreased again. I will repeat again if you weigh a lot more than 150lbs, you will need to take even more than the 5000iu a day.
The doctor who runs this website has said in the past that if levels do not rise or do not rise into the “healthy” level which we promote 50ng/ml, then you just need to take more. It sounds like you have Osteomalacia and it may take a lot of Vitamin D to correct this and it could take a while. It is why we promote rechecking levels to see what is happening and not just assume someone will be ok with a certain amount of treatment.
So I hope right before the end of the 10 weeks the doctor plans on retesting. If your levels have not increased by much, then you should continue at an even higher amount of Vitamin D then you are presently taking. If you have made it to 50ng/ml, then go no lower than a maintenance dosage of 5000iu. Considering your circumstances I would then retest again in 8 weeks and see if you are able to keep that level. If not and it drops lower, than you will need a higher maintenance dosage.
Another good clue would be if you are not feeling completely better by the end of 10 weeks, then it is probably not a good idea to drop to a maintenance dosage yet.
If possible and you can, come back and tell me how you are feeling and what your levels are at the 10 weeks. It would maybe give me an idea when other people ask “how long till I am better”.
If you have more questions, just ask!Answered by IAW on September 18, 2016 at 6:07 am
DL3988835900 on September 19, 2016 at 9:01 am
Thank you for your further reply. I cannot remember my precise Vit D3 level at my first blood test but certainly it was lower than 25 nanomoles/litre (10ng/ml?) as it was defined as ‘deficient’ by UK NHS standards. I do not know for how long I was at that level. After my first treatment, the level rose to ‘insufficient’ (between 10 and 20ng/ml). I am scheduled for a further blood test in November, which will be 2 weeks or so after my current course of treatment ends. In the UK, the NHS permits Vit D3 blood tests only at 3 monthly intervals. If I may, I will come back to you in November..Answered by DL3988835900 on September 19, 2016 at 9:01 am
IAW on September 19, 2016 at 11:07 am
I am really hoping you come back one more time to read the following.
You said “I am scheduled for a further blood test in November, which will be 2 weeks or so after my current course of treatment ends”. I hope you start the 5000iu right after you end the last 20,000iu. If you wait two or three weeks to get the blood test first, before starting the 5000iu your levels are going to start to drop fairly quickly and I would not like to see you “lose the ground” that you have already gained.Answered by IAW on September 19, 2016 at 11:07 am