Asked by mrussell0115581500 on September 22, 2016
mrussell0115581500 on September 22, 2016 at 6:18 am
I probably should also point out here that I am (almost) 62 years old, and low Vitamin D levels have been an issue for me in the past. I have brought my level up from the 14 that it was several years ago.Answered by mrussell0115581500 on September 22, 2016 at 6:18 am
IAWParticipantIAW on September 22, 2016 at 8:00 am
I think you are the “poster person” for taking Vitamin D (and sunlamp) and everyone should have left you alone.
So I am not a doctor. I read everything that gets posted to the “blog and news” and NO WHERE have I had any indication that the upper end of the range has changed or will change or should change. In fact I learned a long time ago that you can go as high as 150ng/ml and not become toxic. (I assume your 98 was measured as ng/ml and not nmol/l?)
So yes your 60ng/ml is probably correct. If you stop taking Vitamin D altogether and get no sunshine, then levels drop by 1/2 every two weeks.
Above you said “benefit from that level (neurological and balance issues from Transverse Myelitis”. So did you mean if you keep that level, then these symptoms are less or non existent OR you just do not want those symptoms to get worse??? (After you post your answer, I may come back and post again.)
So in the mean time, my real thoughts are to either get a new doctor OR refuse to take the Vitamin D test OR do not show up for the test. Of course the doctor may say you have to find a new doctor. You could also ask her for “copies” of the “research” that shows over 80ng/ml is bad for you. Tell her you refuse to take any more Vitamin D tests and you will be responsible for any adverse outcomes.Answered by IAW on September 22, 2016 at 8:00 am
mrussell0115581500 on September 22, 2016 at 6:50 pm
Thank you for your response. My answer to your question is this: It has only been perhaps the last 5-6 years that I have been aware of my Vitamin D levels. I have had the condition (TM) for 17 years. The past three years or so, I have practically been able to gauge whether my Vitamin D levels have gone up or down, based on my symptoms. In fact, at one point, I could tell the difference in neurological symptoms I experienced before and after a single sunlamp session. (I had stopped the sunlamp for a while, and believe my levels had slipped, and I was that sensitive to changes at that point.). As time progressed, (and I believe my levels increased) my symptoms remained stable–not non-existent, but better than they are when my levels decrease. I was quite surprised to find they were as high as 98, but it just confirmed my suspicions. Now that my levels are 62 (if this is indeed correct), my symptoms are worsening again.
What I am THINKING of doing is to send the most recent lab results to my doctor, tell her I am aware there could be lab discrepancies, but since my insurance will not pay for repeated testing and I need to maintain my levels around 70-80, the burden will be on me to pay for testing, and that this latest result is what I have to compare to. My primary reason for having that testing to begin with was that I also wanted a Mag RBC test that I knew my insurance wouldn’t pay for, and I saw it as an opportunity to check the progress in my D level as well, so she should not be offended (hopefully) that I sought testing elsewhere.Answered by mrussell0115581500 on September 22, 2016 at 6:50 pm
IAWParticipantIAW on September 23, 2016 at 5:14 am
Thank you so much for the information!
I looked up Transverse Myelitis and even found and old blog post here about it. It is likely to happen with low levels of Vitamin D like so many other things.
Dr. Cannell routinely tells people that if they have a condition/disease, they may want/need to keep their levels higher at more like 80ng/ml.
I “personally” do not feel the 98ng/ml is an issue and like I said I have seen nothing at this website to indicate anything under 150ng/ml is now “toxic”.
So if I were you, I would not worry, I would keep doing what you are doing and being aware of the symptoms of Vitamin D overdose is good.Answered by IAW on September 23, 2016 at 5:14 am