I’m writing you to keep you updated about the situation of my child, 7 years and 8 months aged, 24 Kg of body weight affected by autistic spectrum disorder NOS.
My son has increased the dose of vitamin D to 7,000 since April 7th as you suggested. He also replaced the 5,000 capsule with Bio Tech’s “D-Plus”.
Today he has performed the dosage of 25-OH vitamin D, and it resulted to be 100 ng/mL. Calcium, phosphorous, urea and creatinine are within the normal range.
His clinical situation is stable or maybe slightly improved but honestly, I cannot see a clear or a “step-up” improvement in the latest months.
I think he should reduce the dose to 5,000 or 6,000. Do you agree with me?
Moreover considering that in July we will take a mountain vacation for a week and a sea vacation on the next week, do you think he has to withdrawal (or further reduce the dose) in these 2 weeks and then start (or increase the dose) again once back at home? (Of course in these two weeks he will be exposed to sun for several hours of the day).
Thank you very much for your help.
Professor Ronald Smith, MD
Does the child get any vitamin A in the form of acetate or palmitate, either in cod liver oil or multivitamins, or did he in the past? If so, get a vitamin A level and see if it is high normal.
I would reduce vitamin D to 5,000 IU/day or just the D-Plus capsules, and repeat his level in a month.
During vacation, if he is in the sun without sunblock and without many clothes during the hottest times of the day, he does not need supplements on those days. The days he does not do this during the vacation, give him 5,000 IU on those days. His shadow must be shorter than he is to make lots of vitamin D although it is still made when his shadow is twice his height.
With high normal vitamin D levels, you may notice his skin is less likely to sunburn than before, if he ever did.
Some parents report that it takes months to see an improvement so I would keep his vitamin D level in the high range of normal, around 80 ng/ml.
I would be surprised if he does not improve with lots of sun exposure in that many parents report seasonality to symptoms when asked and the sun may do more than simply make vitamin D.
Please consider videotaping him every thirty days, as sometimes improvements are slow and are not noticed by those who see the child every day.
If he does not improve on vitamin D in six months, he will be the first autistic child I have tried to help who achieved 80 ng/ml for six months and did not improve.
John Cannell, MD