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Information on the latest vitamin D news and research.

Find out more information on deficiency, supplementation, sun exposure, and how vitamin D relates to your health.

I was found to be Vitamin D3 deficient some 2 years ago following a blood test for an unrelated problem. I have no idea for how long prior to that I was deficient. I was treated with 50000IU per week for 8 weeks and my condition improved from deficient to insufficient. Despite further similar treatments, my Vitamin D3 level has fallen again. I now have aches in my ribs, shoulders, wrists, fingers and sacroiliac joint, a scoliosis and osteopenia. I am now having further treatment with 60000IU per week over 10 weeks with a different compound, and am noticing a reduction in the discomfort. Is it possible that these widespread aches are the result of a long-term Vitamin D3 deficiency? And is it possible that one form of medication doesn't 'work' whereas a different form does?

Ask the Vitamin D Council

Asked by  DL3988835900 on September 17, 2016

Answers

  • DL3988835900
    Participant
     DL3988835900 on

    See title

    Answered by  DL3988835900 on

  • IAW
    Participant
     IAW on

    I would probably need a little more information.
    The first time(s) you were treated were you given D2 or D3? (In the USA prescription Vitamin D is D2.) So when you say 60,000iu and a “different compound” is it perhaps D3 and if not what is it? (I suspect the first one(s) were D2 and you have now been given D3?)
    Yes, the “wide spread aches” are from the deficiency. If your level is low enough you might even have Osteomalacia/adult rickets. (The Osteopenia might actually be rickets.)
    “Is it possible that one form of medication doesn’t ‘work’ where as a different form does?” I would need the answers to the above questions, as best you can, to answer this.
    Besides the “types” of Vitamin D what also counts is the amount given and most importantly that after treated you “continue” with a maintenance dosage forever. If you do not then your levels will plummet again because the human body needs a lot of Vitamin D3 every day to process all sorts of things.
    So we here at the VDC recommend a maintenance dosage of 5000iu per day if you weigh around 150lbs. If you weigh more than that, you have to take more.This will usually keep people at a level of 50ng/ml (125nmol/l) and this is a “healthy” level. Any level below 40ng/ml and your risk for cancers and other diseases increases dramatically.

    Answered by  IAW on

    • DL3988835900
      Participant
       DL3988835900 on

      Thank you for your reply. All my treatments – I’m currently on the 4th – have been Vitamin D3. My doctor is at a loss to understand why the first resulted in an improvement, though not to sufficiency, and why the second two didn’t achieve any further improvement, but rather a decline in levels. In between treatments I have taken a maintenance dose of 2000iu daily, rather than the 5000iu the Council recommends. The first three treatments were of Thorens 25000iu twice weekly. Now on Fultium 20000iu x3 weekly. I appreciate the brand names may mean little in the US

      Answered by  DL3988835900 on

  • IAW
    Participant
     IAW on

    Both of the products are D3. I looked them up to be double sure. (So there should not really be a difference there.)
    Even though you have not said what your level was originally, I suspect it was extremely low.
    The 2000iu was not enough to keep those levels “up”, they would have decreased again. I will repeat again if you weigh a lot more than 150lbs, you will need to take even more than the 5000iu a day.
    The doctor who runs this website has said in the past that if levels do not rise or do not rise into the “healthy” level which we promote 50ng/ml, then you just need to take more. It sounds like you have Osteomalacia and it may take a lot of Vitamin D to correct this and it could take a while. It is why we promote rechecking levels to see what is happening and not just assume someone will be ok with a certain amount of treatment.
    So I hope right before the end of the 10 weeks the doctor plans on retesting. If your levels have not increased by much, then you should continue at an even higher amount of Vitamin D then you are presently taking. If you have made it to 50ng/ml, then go no lower than a maintenance dosage of 5000iu. Considering your circumstances I would then retest again in 8 weeks and see if you are able to keep that level. If not and it drops lower, than you will need a higher maintenance dosage.
    Another good clue would be if you are not feeling completely better by the end of 10 weeks, then it is probably not a good idea to drop to a maintenance dosage yet.
    If possible and you can, come back and tell me how you are feeling and what your levels are at the 10 weeks. It would maybe give me an idea when other people ask “how long till I am better”.
    If you have more questions, just ask!

    Answered by  IAW on

  • DL3988835900
    Participant
     DL3988835900 on

    Thank you for your further reply. I cannot remember my precise Vit D3 level at my first blood test but certainly it was lower than 25 nanomoles/litre (10ng/ml?) as it was defined as ‘deficient’ by UK NHS standards. I do not know for how long I was at that level. After my first treatment, the level rose to ‘insufficient’ (between 10 and 20ng/ml). I am scheduled for a further blood test in November, which will be 2 weeks or so after my current course of treatment ends. In the UK, the NHS permits Vit D3 blood tests only at 3 monthly intervals. If I may, I will come back to you in November..

    Answered by  DL3988835900 on

  • IAW
    Participant
     IAW on

    I am really hoping you come back one more time to read the following.
    You said “I am scheduled for a further blood test in November, which will be 2 weeks or so after my current course of treatment ends”. I hope you start the 5000iu right after you end the last 20,000iu. If you wait two or three weeks to get the blood test first, before starting the 5000iu your levels are going to start to drop fairly quickly and I would not like to see you “lose the ground” that you have already gained.

    Answered by  IAW on

  • DL3988835900
    Participant
     DL3988835900 on

    I will certainly do that, thank you.

    Answered by  DL3988835900 on