Asked by Emmaantonys99609400 on March 4, 2016
IAW on March 4, 2016 at 4:03 pm
You should read http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/ it contains all of the vitamins and minerals that are needed to go with Vitamin D. Many people do not get enough magnesium in their diets so you may need to supplement. If you believe your diet contains all the amounts that are recommended , like for K1 and K2, then you do not need to supplement. Not all of us eat well though.
As a side note. Once you are done with the 8 weeks you will still need to supplement with Vitamin D or your levels will plummet again. We recommend 5000iu a day in order to maintain a healthy Vitamin D level of a minimum of 50ng/ml (125nmol/l). This is based on an average person weighing 150lbs. If you weigh more, you may need more.
Also it is better to take Vitamin D on a daily basis but it will still be beneficial and OK to take the 50,000iu once a week for eight weeks. I hope your physician has plans to retest you at the end of 8 weeks!Answered by IAW on March 4, 2016 at 4:03 pm
IAW on April 24, 2016 at 11:37 am
You are correct it equals 60ng/ml and that is a good number. You are looking for 50ng/ml or slightly above. (I will assume you have no major health concerns or I might answer differently.)
If you start taking 5000iu a day that level might drop a little. If you want to stay there then you might want to take 6-7000iu a day. The 50,000iu a day actually equals about 7000iu a day.
Also keep something in mind. If something major happens to your health, for example you break your leg, you might have to increase your vitamin d intake a little to compensate.
If you have any more questions, please ask!Answered by IAW on April 24, 2016 at 11:37 am
Emmaantonys99609400 on May 15, 2016 at 7:02 am
Hi thank you for your help I have had many health problems yes when I was low at 8 extreme muscle fatigue and lots of others to go along with this like muscle twitching, sensory problems extreme fatigue. Random bone aches that would go as fast as they appeared. My problem is now balancing vitamin d levels at the end of seven weekly doses of 50000 iu I hit 150 then took no suppliments and dropped to 128 then 12 days later after sun only I’m at 190 which I thought was a big jump is this normal obviously I’m unsure about taking suppliments so I don’t go to far now I don’t want to go in the sun I can’t find a balanceAnswered by Emmaantonys99609400 on May 15, 2016 at 7:02 am
Emmaantonys99609400 on May 15, 2016 at 7:14 am
If it any help to others after four weeks of supplimentin I felt better then I felt worse I also found at that point I had low iron just below optimal levels. I remained to feel awful for a couple of weeks with more sensory problems like rls and random pins and needles fizzing sensations at aprox eight weeks after not taking suppliments problems began to decrease still happening but not as regular. Energy increased upon exercise fatigue become less sensory problems began to slow. I feel like u have to feel the pain of mending too that’s my hunch. My doctor said I prob need suppliments for life but if I’m regular in the sun it’s proved my levels to bounce well up. It seems to be a long process on recovering and there is gd days and badAnswered by Emmaantonys99609400 on May 15, 2016 at 7:14 am
Emmaantonys99609400 on May 15, 2016 at 7:38 am
I know I’m going on but just to help. I had a car accident I broke my c2 which to those who don’t know is my neck. I was fine throughout healing obviously in bed for three months so hardly using my muscles they removed a cage of my head and problems began saying this I had this un known severe vitamin deficiency d. Obviously my neck was going to hurt it hadn’t moved for three months my god coupled with vit d muscle ache it was excruciating like glass. At this point I could walk about so I began to exercise again yes fatigue in recovery is normal but I couldn’t walk after exercise felt like I had ran a marathon random aches that moved around the body knee pain bones in my foot ached see I hadn’t felt this cause I hadn’t exercised for three months but my stamina was immense before all this and I knew this just wasn’t recovery. Doctors confirmed vit d deficiency level eight. Twitching muscles even when I coughed from back muscles to eyes. Random rls like bugs in legs . Muscle quivering tingling upon use. They ruled out nerve damage on mri. My neuro surgeon said it was symptoms consistent with hypovitaminoSis d. Told me it’s causes bizarre symptoms. Anyway I just like to say through being severly low on d my c2 healed at a normal rate and healed well. But my body has paid a price people sat vitamin d only causes bone ache muscle ache it does not it can cause random all sortsAnswered by Emmaantonys99609400 on May 15, 2016 at 7:38 am
Emmaantonys99609400 on May 15, 2016 at 7:49 am
Sorry vitamin d council I’m just trying to give some information and amongst all that my question is my level went from 128 to 190 in twelve days with a few hours of sun each day no suppliments now I think if I go in the sun I might go over and the doctors in the uk will only test u after certain periods so trying to stop myself going to high to low is a pain any advice thanks xAnswered by Emmaantonys99609400 on May 15, 2016 at 7:49 am
IAW on May 15, 2016 at 8:50 am
Emma some of what you said is confusing me, so if you could be a little clearer.(Maybe a timeline? Include when you were taking D and not taking the D and how much.) Did you take the 50,000iu for 8 straight weeks? During that 8 weeks of 50,000iu, did you get symptoms that you DID NOT have before starting the Vitamin D? (You said “at approx eight weeks after not taking supplements problems began to decrease”.) When you started the Vitamin D, did the doctor tell you to take calcium and if so how much and did you take it? This is very important so please answer!
I am also a little confused how much if any, Vitamin D you are presently taking?
The timeline sounds like this to me:
You took 50,000iu for eight weeks.
It sounds like half way through the 8 weeks that you started getting other symptoms and since stopping(?) the D, these symptoms have now gone away/decreased.
It sound like you have NOT been taking any Vitamin D when the 8 weeks ended and now you are getting sunshine(?).
So to try and answer your question, Vitamin D has a half life. So for example if you were supplementing and had a level of your 150nmol/l, stopped supplementing and got no sunshine, in two weeks time that level will be cut in half to 75nmol/l and in two weeks half again. So really the 128 came from “leftover”supplements and you added 62 from sunshine. If you got the exact amount of sunshine over the next twelve days and took a level it could be lower or higher.
So at this point you could do any of the following and they are all guesses. Take 5000iu a day and get some sunshine and you will most likely be higher in the range but not over the top end. Take 3000iu a day and make sure you get sunshine. If you know there is a day you will not get out or it’s cloudy/rainy take 5000iu that day. If each one of your days is filled with sunshine and you get to spend several hours in it, then do not take any. When September rolls around put yourself back on 5000iu a day, even if it is warm outside. Angle of the sun has everything to do with Vitamin D production.Answered by IAW on May 15, 2016 at 8:50 am
Emmaantonys99609400 on May 15, 2016 at 9:51 am
Hi my apologies.
Started at a measure of eight
Supplimented 6x 50000 iu once weekly measured 150.6
Stopped all suppliment and no sun and foods for 17 days measured 128.
Had sun at right time of day aprox half hr each day for 11 days measured 190.1.
Start of taking d3 50000iu improvement first few weeks then more symptoms progressed after I stopped d3 after six weeks symptoms improved and we’re less.
Calcium was measured five weeks into taking d3 was adequate.no calcium taken. Only had low iron.
Not taken any d3 for a monthAnswered by Emmaantonys99609400 on May 15, 2016 at 9:51 am
IAW on May 15, 2016 at 11:19 am
I am not a doctor and this really bothers me. The doctors should know that if they are treating someone whose Vitamin D is that low, they need to prescribe the Vitamin D and calcium to go with it. From what I gather the protocol is 800mg of calcium. When you said “Calcium was measured five weeks into taking d3 was adequate,no calcium taken.” it was NOT adequate. According to Medscape “The corrected total serum calcium concentration is normally 8.5-10.2 mg/dL, but there is no sure means of predicting the serum calcium level, for either hypocalcemia or hypercalcemia, AT WHICH SYMPTOMS WILL OCCUR.” “Because low levels of vitamin D prevent calcium absorption, people with vitamin D deficiency may also have symptoms of low calcium such as muscle spasm, cramping and numbness, tingling in the limbs, and numbness around the mouth or in the hands and feet”. You were low in calcium and probably magnesium.and a blood test will not tell you.
So I think part of your worry is why the 190nmol/l without taking any supplements? It probably means you are getting the perfect amount of sunshine and do not need supplements until winter. (Maybe on rainy/cloudy days take 5000iu.) Could also mean without co-factors it cannot get used. If that is the case then I would go by how you feel. If you still do not feel well then get some calcium and magnesium and the sunshine and see what happens. (If I have not been clear, I think it would be a huge mistake to not at least get some calcium supplements!)Answered by IAW on May 15, 2016 at 11:19 am
Emmaantonys99609400 on May 15, 2016 at 12:13 pm
The doctors I have visited don’t know much about vitsmin d at all o had to ring to ask if they were checking my calcium at some point my physio doesn’t know about vitamin d I had to tell her and she works in the nhs considering they are supposed to be clued up on bones and problems I thought they would of a least of known. I did visit hospital one night I started to get tingles round my mouth but they just sent me away. It’s a real bad fight to get any answers in the uk and there is such an epidemic of bone problems the sun is rare and I know first hand now what lack of sun can do its very painful. My doctor actually perscribed me 800 iu at first with a level eight until another doctor corrected him. But I won’t go on I just feel it’s getting over looked. Bit I really do appreciate your help thankyouAnswered by Emmaantonys99609400 on May 15, 2016 at 12:13 pm
IAW on May 15, 2016 at 12:33 pm
“I did visit hospital one night.” “I started to get tingles round my mouth but they just sent me away.” OMG you could have died! So glad you pulled through! So I think most of your symptoms could have been avoided if 2nd doctor had known what they were doing and not told you to stop the calcium. It’s bad enough they do not know about Vitamin D but they should have known the symptoms of hypocalcemia.
Just let me know if you have any more questions or concerns. You are not a bother and you are welcome!Answered by IAW on May 15, 2016 at 12:33 pm
Emmaantonys99609400 on July 18, 2016 at 7:11 am
Hi. Again I have been taking 1000 iu maintenance dose for a while and my last d level was 58.8 I felt great. But again after exercise my knees and quads are hurting then symptoms of lip twitching. Twitches in random muscles neck spasm. Tingling all over brain fog. Pins needles feet twitching eye lids. Feeling hot no temperature. Do u at all think this could be symptoms of low calcium due to taking vitamin d not enough vitamin d or low levels thankyouAnswered by Emmaantonys99609400 on July 18, 2016 at 7:11 am
IAW on July 18, 2016 at 9:43 am
Emma did you convert the nmol/l to ng/ml to get the 58.8? If you did convert it and it is 58.8 “ng/ml” then I assume you are still getting sunshine also along with the 1000iu?? If this is really nmol/l then you are way too low.
So between May and now, I am still a little confused as to how much Vitamin D you are getting thru supplements and sunshine (hours/minutes) .
If you do not get enough Vitamin D, then your body cannot absorb calcium from your intestines and you could have low calcium that way. If you take/get enough Vitamin D but do not have enough calcium in your diet then you will get low calcium and symptoms. My first instinct is that you went way too low on the maintenance dosage.
When was the “feel great” before or after going to the 1000iu? For the moment forget your Vitamin D levels.Try and tell me how much Vitamin D you were taking at the time you felt good AND how much you were taking the several weeks leading up to that. Did your sun habits change any from then till now?Answered by IAW on July 18, 2016 at 9:43 am
Emmaantonys99609400 on July 18, 2016 at 11:29 am
Hi done 7 weeks of 50000 stopped all vitamins as I done private blood tests always reading above 100 nmol so I thought I was OK not to suppliment even high ones of 190 this is all in time frame of three months. After three months doc took my blood was 64nmol at same time I got private test result 58.8 both tubes not blot tests so at that I started to maintenance at 1000 iu per day for a while about two week I suppliment with a calcium magnesium k2 vitamin tab with other vitamins in it also but it was 1000 of d3 a 1000 calcium and 500 mag solgar ultimate bone health then I went back to a fortnight or so of 1000 to 2000 d3 only felt OK but for past wk all same symptoms again .Answered by Emmaantonys99609400 on July 18, 2016 at 11:29 am
IAW on July 18, 2016 at 12:49 pm
My conclusion is that you took way too much Vitamin D supplement away.You are not taking enough. The other thing is for you not to put so much emphasis on getting tested or the test results because it is confusing you. The 64nmol/l is way too low!
So we know that if Emma takes 7000iu of Vitamin D a day your level will reach 150nmol/l and that is a “good thing”. (I said before you should be at least to 125nmol/l.) So in winter time I would take no less than 5000iu but I think you should really take 6-7000iu.
In the summer, I would try 4-5000iu and some sun. I would go no less than 4000iu but you may need 5000iu. That 1/2 hour of sun is not going to get you much unless you are pretty much unclothed. If you plan a “holiday” or can be out “hours” during the weekend, than what you could do is not take any Vitamin D that day(s).
So if you want to feel better faster take 6000iu a day till you feel better (do not worry if you are getting some sun too), then try the 4000 or 5000iu.
Hope this helps!Answered by IAW on July 18, 2016 at 12:49 pm
Emmaantonys99609400 on July 18, 2016 at 1:35 pm
I don’t think I’ve ever reached 150 nmol to be honest because at the same time the doctor gave blood level of 64 nmol the blot test said 113 nmol so there was a confusion so iv stuck to the doctors reading from now on but all blot tests were high strangely. I’ll try higher dose supp like you said I just hope the low calcium symptoms if that’s what they are dissappear thanks for your help cause it’s like pulling teeth with doctors hereAnswered by Emmaantonys99609400 on July 18, 2016 at 1:35 pm
IAW on July 18, 2016 at 3:56 pm
Glad to help Emma! Sorry I did not know that you were having differences between types of tests.
The test you had at the end of three months at 64/58nmol/l is not an optimal level. What I do not know is if you were higher at the 8 week mark while taking the 50K once a week and then the level dropped off again if you were taking a lot less for month number three.
Let me know how you feel in several weeks. (Hopefully better!)Answered by IAW on July 18, 2016 at 3:56 pm
IAW on July 24, 2016 at 5:41 am
I do not think there is an “official” time but usually you do wait at least 8 weeks for a leveling out time. I think at about that time the Vitamin D has found a stable level at the amount that is taken.
Emma when you did the blood spot tests, can you explain exactly how it was conducted? I have some information on our blood spot testing that I could maybe compare to, to see if the issue is in how the test gets performed or how they measure. Apparently it can make a difference how you perform our test, as to the results, but you do not get a huge difference like you were getting.Answered by IAW on July 24, 2016 at 5:41 am
Emmaantonys99609400 on July 24, 2016 at 7:22 am
It goes like this
26th Feb blood taken from doctor 25OH vit D total 8nmol
Six weeks later 12th April( blood spot on card liquid) chromatography mass spectrometry method 150.6 nmol
2.5 week later ..29th April Lc/ms QQQ method (blood spot card) 128nmol
11days later 10th may liquid chromatography mass spectrometry method (blood spot card) 190 nmol
21days later 31st may bloods taken by doctor same as first ever test just says plasma 25-hydroxy vitamin d3 level 64 nmol
Took 5000 iu weekly from 2nd Feb to 14th April then no suppliments up till 31st may aprox six weeks then blood at docs was 64nmol
Since 31st may I took 1000iu but recently increased to 3000iu day as symptoms have returned little sun past four week
Hope this helpsAnswered by Emmaantonys99609400 on July 24, 2016 at 7:22 am
Emmaantonys99609400 on July 24, 2016 at 7:38 am
Symptoms seemed to die down aprox four week after last dose of 50000 iu I had loads of sun from may regular sunbathing but from middle June we have mainly been cloudy but I still try get out but for past fortnight boom symptoms came back after feeling OK and walking about was able to run upstairs previous again but back came knee ache quad ache hurts to get upstairs to feeling rough with twitches in muscles burning bones like flu tingling in legs dizzy hot so I upped to 3000 iu plus magnesium about 400mg no more and tiny bit calcium 250mg with little k2 aprox 16.25 ug and tiny boron and Symptoms have died down but can happen randomlyAnswered by Emmaantonys99609400 on July 24, 2016 at 7:38 am
IAW on July 24, 2016 at 1:14 pm
Emma I am sorry! I meant how do you “physically” perform the blood spot test? If you go to https://www.vitamindcouncil.org/testkit/ and scroll down there is a video. If you watch the video, is this how you or a technician performs the spot test? On the VDC blood spot test it says you cannot “touch” the paper but instead have to “drop” the blood onto it. In an email to me the VDC also said the best is a “single dot of blood” in a spot and “dried” before they (customer) close up the envelope.Answered by IAW on July 24, 2016 at 1:14 pm
Emmaantonys99609400 on July 25, 2016 at 8:39 am
I have done a blood test but they use a tube this one before tallied with doctors result so be interesting to see the results. Doctors in the UK have NO clue on vitamin d. Considering there is an epidemicAnswered by Emmaantonys99609400 on July 25, 2016 at 8:39 am
Emmaantonys99609400 on August 6, 2016 at 12:36 pm
Hi again …wondering if u could help me I have vitamin d3 tablets in 1000iu is it OK to take five or are they added with something else would I be better off taking a 5000iu ….just ran out thanksAnswered by Emmaantonys99609400 on August 6, 2016 at 12:36 pm