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Information on the latest vitamin D news and research.

Find out more information on deficiency, supplementation, sun exposure, and how vitamin D relates to your health.

Hello, I am a 62 year old female with many genetic flaws, the most severe is Ehlers-Danlos, a connected tissue disorder, once considered rare, but known now to be quite common but "hiding in plain site". Many of us remain undiagnosed for up to 6 decades. It took me 40 years and much damage ensued, with severe Osteoporosis in late 20's, end stage osteoarthritis by late 30's, many other autoimmune problems. Subsequent investigation on my own by private 23 and Me DNA testing which included genetic health info on methylation and detoxification issues.which revealed why I was severely intolerant of many drugs, specifically opioids and antibiotics as well as food additives and dyes. All this combined with a genetic profile for mold multi susceptibility and chronic inflammatory response disorder and impaired detoxification of many xenobiotic substances as well as biotoxins from mold is overwhelming. Discovered by 23 was a genetic flaw which explained my chronic vitamin d deficiency, I cannot convert sun (I have always lived in very sunny places, and now in the deep southwest, and extreme photosensitivity, I stay covered and my house is as dark as possible with many visual problems from the connective tissue disorder) and food sources to D, so must supplement. Low income, I accepted the script 50,000 iu weekly. I also was directed to use K-2 100 mcg daily. I now want to get rid of the green dye in the D-2 and whatever else the pharmaceutical industry hides in fillers and carriers and will pay for a healthier more bioavailable and consistent product. I also have a genetic inability to uptake any version of B12 without the addition of a specific folate, and luckily was able to alter the gene expression and use a liposomal methylated B-12 spray, but not so with D. Given my history, severity and scope of untreatable conditions for many reasons, and a recent spontaneous fx of the tibial plateau and other history from age 30 with spontaneous fractures of fingers, toes, collarbone, just getting out of bed, to a loss of 4 inches of height in 20 years from compression fractures and disc loss, how do I safely convert from the questionable D-2, we are only able to achieve low normal scores with the massive weekly dose. My geneticist who is also a professor of Clinical Nutrition in Oncology, says I should research and consider all the options. I have and would like to convert to D-3. 1. I would like the product to be consistently present in my body. 2. Bioavailability. In reading a previous discussion posts somewhere I noted a recommendation of taking D-37000-8000 iu daily to properly convert the dosage from D-2 50.000 iu weekly. Math not being my best event, can you confirm or suggest the correct dosage, please. Thank You!

Ask the Vitamin D Council

Asked by  gr8titude1347303300 on August 2, 2016

Answers

  • gr8titude1347303300
    Participant
     gr8titude1347303300 on

    See title

    Answered by  gr8titude1347303300 on

  • IAW
    Participant
     IAW on

    I have to go out for awhile today but should be able to get back to you to night, in order to answer your questions. Talk to you later!

    Answered by  IAW on

    • gr8titude1347303300
      Participant
       gr8titude1347303300 on

      thank you IAW, for your thorough answer. i will do as you suggest, it is what I pretty much figured, but it is helpful to have more experienced input and I will implement these steps and check out the link. Even if it only helps 5%, I am okay with that. My best, Olivia

      Answered by  gr8titude1347303300 on

  • IAW
    Participant
     IAW on

    I am so sorry that you are going thru all of this!
    Please keep in mind, I am not a doctor.
    Most doctors treat a deficiency with 50,000iu of Vitamin D once a week. In the past they used D2 but it is much better for humans to use D3. We here at the VDC promote taking daily doses rather then a larger dose once a week, So I try and encourage anyone ending up here, to take their Vitamin D3 daily and so that 50,000iu equals about 7-8000iu a day. Some doctors treat with more than that. (If you only had 50,000iu of D3 available to you, we could still work with that The really important part is the D3 part.)
    I would highly recommend Biotech’s Vitamin D. “They manufacture high quality Vitamin D capsules at very inexpensive prices and their product is void of dyes, talc, binders, artificial colors and synthetic flavors.” There is a link at the top of the page.
    It is very important to read http://www.vitamindcouncil.org/about-vitamin-d/vitamin-d-and-other-vitamins-and-minerals/. To repair bones Vitamin D also needs magnesium, vitamin K, zinc, boron, silicon and of course calcium. Many people are magnesium deficient and if they start taking Vitamin D it could cause symptoms from the low magnesium. So please keep that in mind. It can also cause other mineral levels to go low. Some doctors even prescribe calcium to go with the Vitamin D.
    Vitamin D should only make you feel better and NOT worse. So if you get any symptoms you should come back and tell me!
    Since you are so sick, you may want to err on the side of caution. Start with 5000iu a day for a week or two and if no problems/symptoms, then increase it. The “official” safe upper limit is 10,000iu a day. So then instead of going to 7 or 8000iu, you could take two 5000’s for a total of 10,000iu a day. It is not too much and may even not be enough if you are extremely low.
    We usually try and encourage getting levels tested after about two months. This would show whether or not you are getting enough or need to increase the amount you are taking.
    If you have more questions please ask! It would also be nice to know how you are doing in a month or two or sooner if you are having issues.

    Answered by  IAW on