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Information on the latest vitamin D news and research.

Find out more information on deficiency, supplementation, sun exposure, and how vitamin D relates to your health.

Back in December, I saw a rheumatologist who was checking me out for fibromyalgia. While testing, he said that my vitamin d level was low at 26 and asked me to start taking 2000 IU daily and he would recheck me in 2 months. I've been taking the vit d, and went on Friday to have it rechecked, and was just told that my level is now 6. I don't understand how it could have dropped when I added the supplements . I can't seem to find anything that really says what causes this other than diet and not getting enough sun. I started getting the fibro symptoms about a year ago. Any insight would be appreciated .

Ask the Vitamin D Council

Asked by  vlong240439025000 on March 7, 2016

Answers

  • vlong240439025000
    Participant
     vlong240439025000 on

    See title

    Answered by  vlong240439025000 on

  • IAW
    Participant
     IAW on

    I can only speculate. I do not know what latitude you live at and your 26ng/ml may have been some “leftover sunshine” before the winter months hit. After that it would be downhill fast on your level even taking the 2000iu. More likely it is because the 2000iu is not even enough for a healthy individual to stay healthy. So if you have a disease or condition such as fibromyalgia and are not taking enough Vitamin D, you are in a sense going “backwards”. In a diseased state you probably use/need A LOT of Vitamin D. (Your fibro was/is caused by low Vitamin D.)
    So unfortunately there are not many studies or trials yet that have tried to prove, for example, how much Vitamin D a person that already has fibromyalgia needs to take to get better.
    So we here at the VDC promote taking 5000iu a day to keep and stay healthy and that should get you to a level of 50ng/ml. (This is based on a weight of 150lbs.) You will need more if you want to improve and maybe even “cure” the fibromyalgia. How much more is a guess. A goal would be to try and get your level to at least 80ng/ml. This may take upwards of 10,000iu a day for several months. If you took 10,000iu for lets say a month and had your levels retested and it barely increased or not by much, then you would have to take even more.
    You may like to read http://www.vitamindcouncil.org/q-a-forum/topic/cured-of-fibromylgia-8-years-ago-in-reference-to-httpwww-vitamindcouncil-orghealth-conditionsfibromyalgia-i-find-it-really-sad-that-research-falls-short-on-either-the-amount-of-vitamin-d-sup/.
    If you have any more questions, please ask!

    Answered by  IAW on

  • vlong240439025000
    Participant
     vlong240439025000 on

    Thanks, I’m in Texas if that helps. My pcp has given me a Rx for 50000iu capsules, to take one a week for 8 weeks then retest.

    Answered by  vlong240439025000 on

  • IAW
    Participant
     IAW on

    It is better for humans to take D3 and not D2 so you may want to take a look at your RX. We also promote taking D3 on a daily basis. The 50,000iu would be about 7000-8000iu a day of D3.

    Answered by  IAW on